Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Alan's been completely bald for years.

    H

  • Helen, I was just about to go into cringe mode, petrified that Alan has got a comb over. Phew.

    OH started to go bald in his mid-twenties, I didn't know him then, but he was glad when I encouraged him to lop off the last vestige of what remained on top - a small wisp just above his eyebrows. The rest soon followed. It's a good job he doesn't take the hump about me telling you this, as I often show him what I've put down. Big hugs lovely xxx

  • 1Hi Lullaby, and another warm welcome from me, I too cared for my mum when she had lung cancer, and understand what a difficult time it can be, but also a very personal and precious time as well, so a big well done in reaching out my friend, I was sorry to read your mum won't take opiate based pain relief, and is suffering with pain which is leading to poor sleep, on top of IBS and constipation. Lullaby IBS is quite common with Naproxen, and constipation not uncommon, so getting mum on the right pain management, she's happy with, will hopefully make things better for you both. I would be getting in touch with mums GP, and cancer team, about a change of meds and if possible a GP referral to your local hospice palliative care team and the direct nurses, I've been lucky to have them both as part of my care team for nearly 2 years, and  can't thank them enough.

    Eddie xx 

  • Hi

    Sorry to hear about your Mum but you've come to the right place to chat about anything and everything. 

    H

  • Thanks Eddie its been and continues to be a very worrying time, and its good to hear and talk to people. I take an antihistamine at night it seems to kick in eventually but my worst time now is at 10pm and then around 5am.

    I think once I know what my chemotherapy looks like I may feel more in the know 

    But its nice to follow the chats here

  • Hello everyone, and a very warm welcome to our new members. 
    It’s a lovely forum to be in. 

    Kez xx

  • Evening Kez. Have you had a good day hon? We've had a nice one, quiet but plenty of tasty food to chomp on while watching the rain drizzling down the window. Little things are often pleasing xxx

  • Hi my friend, the not knowing is the worst, as most of us would say, and the accompanying poor sleep, though I'm glad your getting some sleep and why not, at those difficult moments join in the chats on here, it helps us all having people who understand what we're going through, to talk too  on here. 

    Eddie xx 

  • Evening Eddie. It's lashed it down all day here, but we live at the top end of the valley so don't have problems with excesses of rain. Does Sarah's farm get swamped as that would cause difficulties? I'm hoping it's high enough up. Love Gilly xxx

  • Hi Gilly, for Donny, Sarah's farm is high above sea level, a whopping 5 meters so no risk of flooding as the land is as flat as a pancake, and just to the north is Hatfield Moor, a low lying nature reserve which is fed by all the area's streams and dykes.

    It's rained here all day in not so sunny Shropshire, where I  have the company of 6 lovely girls while Sheila's in Australia, 

    love Eddie and family xx