Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Morning Ray.

    My lass says Japan is the most glorious place to be in, and absolutely loved both her visits.  She went to see three Japanese bands when they played in London and had her photo taken cuddling up to the lead singer.  She was madly in love with him back then, and they had a good chat as his English was ok.  He was really tall I remember, over six foot I reckon.

    Anyway, the potential explosive catheter doesn't sound conducive to flying so I'd leave that out for sure.  I had to wear one when I had my youngest daughter - the trauma of birth had played havoc with my innards - and it was always on view as I had to carry it around.  I just made a joke of it and called it 'my handbag' to others on the ward.  I find it hard to take things about myself seriously and it doesn't always sit well with some.  It's an odd quirk, but it gets me through the day.  Not the night, obviously!

    Gill xx 

  • I find that 3 o'clock is when I can nod off. That applies equally to am and pm. Not very practical but I now live by myself so no-one complains. I'll be making my way upstairs shortly. Thanks for the 'chat.'  Goodnight. Hope you also manage to get some sleep.

  • You too.

    Night night.

    Gill xx 

  • Ray I actually did that in Cyprus, before Covid, I was at a restaurant, drinking Cypriot wine Wine glass, like you do.  Picked up a huge olive, popped it in my mouth... and... bit, totally forgetting they leave the stones in!

    One of my teeth at the side of my mouth totally split in two.  Ouch!!  Since then I have been very careful when eating olives.

    Steve (SteveCam)

  • Hi HeadlessChicken.I can relate to the emotions.You can soldier on for ages and then emotions hit and it becomes overwhelming.I hope you are not putting pressure on yourself in wanting to move on.It can take time to process everything that you have been through since diagnosis.All the stress you have had on top of the cancer is a lot to cope with.It’s horrible being in limbo.I have been stuck since mum died but feel things are beginning to move forward.Best wishes to you and your husband.Love Jane x

  • Hi Gill,I meant to reply last night but had a few technical problems.I saw the Lady Sings the Blues years ago it was good.I heard a lot of jazz growing up as my uncle and parents were fans but I have only kept a few of mum’s jazz cd’s.I felt really old when my friend next door asked ‘who uses CD’s’ she is in her late 30’s and I’m 64.I wouldn’t want to part with my old vinyl collection.It feels like it’s going to be even hotter today.I don’t like the heat and I worry about my partner John.He is disabled with a rare muscle disease and the heat is dangerous for him.He will have loads of fans going today.Jane xx

  • Morning Jane and thank you for your reply.

    No, we don't like the heat either and we've been to my partner's exercise class this morning, which proved uncomfortable as a result.  He's a devil though and used it as an excuse to sit half of it out!  I carried on but kept my eye on him, just in case, but when we left he was grinning.  The smile wiped off his face in the taxi home when I had words.  He's got mobility issues too, and if he doesn't get stuck in, he can kiss goodbye to driving in the future.  Honestly! 

    We've kept our vinyl and even enjoy the scratchy bits when we sometimes play them, and yes, plenty of CDs and DVDs too.  He's 60 and I'm 66 so we fit snugly into the old boilers category.  Well, I do.

    Tell John to stay indoors if he can, as it's gonna get hotter.  Groan.  My lass bought us a super new fan with a remote, so that'll be whirring its head off when the sun comes round this aft.

    Have a lovely day and keep cool.  Me, I want thunderstorms but doubt I'll get lucky.

    Gill xx 

  • Hi Gill,Scratchy LP’s bring back memories of happy times and parties.I want to start some type of exercise class when I move.I  need to get fitter.I think it will all be easier in a new location I will miss this house and garden but it’s time for a change.Have a good day.I’m off to get another cold drink.Jane xx

  • Hi again Jane.

    Just nipped back as I've been super busy.  Yep, I need the exercise too as this time last year I was a mega slob.  A bit sleeker now and don't need crampons to get up steep hills anymore.

    Aw I'm sure you'll enjoy your new house as it's pretty exciting starting a new venture, and it may be easier for John to get around?  Hope so.

    You've inspired me to go for a cool drink - coconut milk with calcium.  It's lovely!

    Gill xx 

  • Hi Gill,I’ve been lazy today just because of the heat.I’ll be living on my own when I move but I’ll be looking to find somewhere John can manage.The plan is to live together in the future.Everything was turned upside down when mum suffered a brain haemorrhage and I started caring for her.I did that for nearly 16 years and now John’s mum is 90 and needs help so John is caring for her.I loved caring for mum but it got harder when she got dementia.I miss her so much she was a real character.Jane x