Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Most of us will always miss our mums, love.  But, even though mine died almost six years ago, there's a little spot every day when I think of her, moreso if I see a robin.  I like to think it's her paying a visit and I acknowledge the little bird and smile.  It gets easier with time.

    I hope you can get yourself and John sorted out and wishing you well with your future plans.

    Gill xx 

  • Hi Gill

    Bags don’t explode on planes or blow up like crisp bags although I do remember thinking about that when I first had my surgery-I have 2 permanent stomas and fly pretty often with 2 bags: in fact I’m off again on Friday. I never follow the rules about only drinking water on a flight as our holiday ritual usually involves having a couple of vodkas on the plane! It’s part of the fun. Sunglasses

    Sarah xx


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  • Morning Sarah.

    Well, that cheeky Ray had me completely taken in! Grin It was so plausible, the way he explained it, that I took it as gospel.  Well and truly duped, I - 0  to Ray!  

    Hey, I bet you can't wait for Friday - where are you heading off to?  Holidays are well exciting and I'd be counting down the days, oh, and the voddies will get you kick-started.  Excellent!  You'll have a fabulous time.

    Gill xx 

  • Hey Gill

    Maybe it’s different with a catheter bag of course-I’ve never travelled with one of those! But 5 years of travelling on planes with stoma bags have certainly given me an insight into managing them while in the air! 

    We are off to Zante to a lovely little hotel we’ve stayed in before so good food and relaxation is the plan. We have our own little pool with our room which certainly makes things easier-I wear tankinis so my bags are well supported/covered and I don’t think anyone would notice but I’m also disabled so I don’t like being the focus of attention trying to get in and out of the main pool-that wouldn’t be a pretty sight! 

    I’ll need to be careful with the voddies as I got an unexpected diabetes diagnosis last week so it will need to be diet mixers for me! 

    Sarah xx


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  • You're inspirational, Sarah, coping as you do and not letting anything get in your way.  You have my admiration.  We're only recently into our journey (my fella has a neck stoma) so we have to stick to local travel as yet.  Time will improve things, I'm confident of that, and patience is the key.

    I'm excited for you, what with the pool and the sea to look forward to.  I wouldn't turn my nose up at either with this heatwave, but I'll  make do with the fan and hiding indoors.  Can't do that yet as shopping calls - gonna get it done early before the sun gets serious.

    Enjoy your day and look forward to Friday.  Annette goes off tomorrow.  Lovely stuff!

    Gill xx 

  • Thanks Gill-it took time to get back to travelling for us as my surgery was so huge in 2020 and had a very long recovery time, but I never wanted to let stomas or disability stop me going away. We would like to return to our favourite place in the world which is Bali, but the journey is really long so I’m not sure that will ever be possible again. But we’ve been very lucky to see a lot of the world before I first got ill. And we can at least still see some of it! 

    I hope you’ll find that you and your husband can do as much travel as you’d like to as he improves-we need to be patient as you say, but I thought I might never travel abroad again, and I’m so glad I was wrong! 

    Sarah xx


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  • Have a great time Sarah.Love Jane xx

  • Thank you Jane. I dread travelling itself but am happy once I get there and at least this flight isn’t too long. I hate being pushed around the airport in a wheelchair, but there’s no way I’m taking any chances with my snazzy, new and very expensive power chair!

    I can hire a wheelchair in Zante for days we want to go out as I won’t be able to walk, but I’ll have my 2 trusty sticks for the hotel, which ironically I know is not really suitable for the disabled! it’s small and I know from our past visit that I can cope there.

    Hope you’re doing ok Jane-we haven’t had a catch up for ages!

    Sarah xx


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  • Hi Sarah,Good to hear you have a new power chair.I’m sure you will have a relaxing time.Not much change here,still in limbo.I’m having a big clear out as I will have to downsize considerably.It’s been cathartic though.Love Jane xx

  • You made me chuckle. My problem is that I'm a retired engineer. Looking more closely at the crisp bag vs a catheter and bag, they will react differently. Most if not all crisp bags are nitrogen filled to preserve freshness. Like any gas in a sealed container, it will expand or contract if the temperature changes. Crisp bags are designed to accommodate typical storage and transport environments. Just occasionally one will burst in an aircraft, not so much because of temperature changes but because the cabin pressure reduces. This gives the gas in the bag room to expand as it tries to reach equilibrium, only restrained by the flexible but not very elastic bag - or go pop. Catheter bags, if used correctly, contain very little gas. New, they are completely flat. Even when swollen from one's outflow, emptying does not allow air in. The bag simply goes flat again. No real problem. Thank you for making me consider the matter properly. Said with a broad grin.  Ray xx