Awake and up all night

Moderator - Macmillan Community 10 months ago

6858 replies
314 subscribers
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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

Have trouble sleeping and looking for somewhere to talk
Would like some company and support each other during the night
Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

Gill H 5 months ago in reply to Twirly

Hi Clare and welcome from me, but I hope you're sleeping right now. Good advice from Eddie and I'll try to add to it: ask your employer for an SSP1 form. This should enable you to apply for ESA or Universal Credit, and use the calculator on the government website; that will inform you which benefits you may be able to claim. You might have already done all that, and I know living with a partner can put the kibosh on potential claims too, which I find grossly unfair in your case.

Do you feel well enough or even ready to go back to work yet? I'd ask my partner for financial help whilst waiting for a decision on a claim, or even go back to your GP and explain your situation to see if they can help.

I'm sorry but not surprised this is affecting your sleep hon, but don't fall into despair as hopefully something can be done. Why not try the Macmillan helpline later today, as they've got experience with helping others through this. Good luck my lovely, and let's hope your sleep gets back on track xxx

Kezdc16ad 5 months ago in reply to SarahH21

Aww, thank you Sarah.
I agree, I just want to get some normality when I am able to.
Feeling tired tonight, so will be resting for the next couple of days.

Kez. xx

Kezdc16ad 5 months ago in reply to eddiel

Aww, thanks Eddie.
Fair point, and quite rightly so. Your photos are amazing.

Kez xx

Kezdc16ad 5 months ago in reply to Twirly

Hello Twirly. Welcome.
I am so sorry to read about your situation.

Kez xx

eddiel 5 months ago in reply to Kezdc16ad

Good evening Kez, and thank you, I do occasionally surprise myself with my phone pic's, with a good one, so how has your day been my friend?

Eddie xx

Sbird 5 months ago

Hi all

We're home. 7 hours driving with 2 very short stops. We had to get home without turning the engine off due to the engine problem

I've had an upset stomach since we got home, it's a throwback from the radiotherapy all good now though.

I've got 2 mountains of washing to get through

Lovely photo eddiel

Hopefully you're all good this evening.

Sbird 5 months ago

Gill H said:
I'm going to start looking for appliances that turn typing into speech

That sounds like a good plan

Sbird 5 months ago in reply to eddiel

It sounds like you're having a good time

Sbird 5 months ago in reply to Twirly

Hi Twirly

Sorry to hear you're having worries, I hope you can get this sorted.

eddiel 5 months ago in reply to Sbird

Welcome home, you, and the van made it, yippee, Helen my friends gave me this advice regarding nails.

Wear cooling gloves during treatment, if allowed. Keep your nails short, keep away from nail salons, and moisturise regularly with natural oils/balms- 3 of my friends used polybalm.. and wear protective gloves when doing chores.

Well my friend, have you somewhere in mind for your next holiday?.

love Eddie and Sheila xx