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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Hi Jann and I'm here
I was explaining to Sarah and Eddie that our day hadn't been great but all's fine now sweetheart.
Sarah will sort you out with the site, so just be patient hon, but don't worry if you're getting confused and you're certainly not mad. You are funny though, and I liked your comment about spam!
I'm going to catch up on some sleep, so I'll say night night and see you soon my lovely xxx sweet dreams xx
Night night Gill, and a special bosie. I’ve had my pills so I’ll zonk out suddenly very soon!
Let’s hope tomorrow is a better day.
Sarah xx
Awww one of those days my friend, I know them too well. I know you'll move on, but it would be nice not to have them in the first place, the strangest thing about the photo was that it had been so windy all day and for a few minutes everything went calm, magical. I see Sarah's been teaching you some Scottish words, bosie is lovely word as in hug, which I hope you mean my friend, as it's original meaning is bosoms, I can never be sure with you lol.
love Eddie and family xx
As you can see I'm still awake Eddie. I blame it on dozing off several times today. You cheeky monkey! I didn't know bosie meant bosoms, but I do now. Lol! Hey, that photo could have been taken by a pro it's that good, and I bet quite a few on here will love it.
One of the things that got me today was the fact it's almost a year since I heard LOH's voice, and it's pretty hard to get to grips with. Once all the issues are dealt with, I've told him we'll look into him getting a TEP, but it would mean further surgery. In the meantime I'm going to start looking for appliances that turn typing into speech, so I'll let you know how I get on. I was thinking an early Christmas present? Are the dogs enjoying their new walks on the beach and stuff? Sand dunes are my absolute favourite and I bet there's loads there, even though they scratch like mad. Love to all xxx
Hey Gilly I'm just the messenger, regarding bosie, before C I used to love studying words and phrases, their meanings and origins, Gaelic and Scottish being big favourites, and I'd like to take the credit for the photo, but my new phone does everything, I just click away.
Awww sweetheart; I'm not surprised today's anniversary was upsetting, I can't imagine how difficult it is for you both, but you still have LOH in your life my friend, which is what matters most, that would be fab, Gilly most laptops, pads, and smartphones do speech typing in real time, so check your devices first.
The dogs are in their element, they love the beaches and even have a little paddle, I went for a swim earlier but they didn't follow me in, nor did the girls, once again. PS the water was warmer than the air, so how can it be too cold.
Sleep well my friend Eddie xx
A swim in the sea would be heaven Eddie I'm delving deep into the speech apps and have found some really good ones, recommended by laryngectomees, so my debit card is flexing its muscles. I'm not saying owt yet so it will be a surprise for LOH. Now you get some kip and enjoy the sea and all the views when you get up. Sleep tight my friend xxx
Hi Twirly, and welcome, I'm sorry to hear of your situation my friend, it seems so unfair to treat anyone, who is classed disabled due to their cancer diagnosis, I know your hopefully through it, but everyone who has had a cancer diagnosis is classed as disabled even after being cured.
I'm no expert on benefits my friend, but would suggest you contact the citizens advice bureau, Macmillan helpline, and if you have one your local Maggies centre.
I wouldn't like to rely on my partner either, but would be ok with it for a while, but I know if it was the other way around I would happily support her.
It's a big step going back to work Twirly, good luck my friend.
Eddie xx
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