Awake and up all night

Hi Odette

Oh, how fabulous for you all to be getting away on holiday! One of my friends and her hubby and daughter just went to Turkey the other day and looks to be having a lovely time. I’ve been a couple of times and love it there. 

I’m a big list maker getting ready for holidays, from when I had my kids to pack for as well as hubby! I still do it now -I like to be organised. I’m sure you’ll have a brilliant time and the house will be full of excitement right now!

Sarah xx

Most of us are in the UK, but we are happy to have someone join us from across the pond. You’ll find people chatting at all times of the day and night here, so the time difference isn’t too important.

Sarah xx

Hi Introuble, we are a UK based community forum, but welcome people from around the world, l have friends from San Francisco, New Zealand, South Australia, Germany and Greece, so you are very welcome on here my friend.

Eddie xx 

Ok I understand that this disease causes lymph nodes to swell and I've been told that they can connect in cases to form something like rope of different sizes but they are pretty much all over my body now including my head face neck and so on I can actually move them at times to a totally different place sometimes really easily other times seems to have really good grip on something but they always eventually come back but sometimes they all swell up same time and I have trouble breathing and feel like I'm being smothered from inside has anyone else felt anything close to this has anyone heard of a way to help them relax in bad times seems to be progressing faster now thank you all

That is awesome I've always wanted to travel around the world and see some of the beautiful places and amazing sites and meet nice people like you all but I'm not done fighting this crap so God willing I might get the chance someday 

Hi Sarah, I  know you'll be very aware of this, my friend, but I just wanted to add a note of caution to anyone with cancer whose thinking/using hot water bottles, to not put them near their cancer, as cancer can de-sensitise your skin, so you can be unaware of a serious burn until it's too late.

 Eddie xx 

Thanks Sarah. Managed to make a good start on the packing this evening. Kids have only just gone to bed! Yeap start of school holidays and the excitement means trying  to get them to bed at normal time is a nightmare!   

I've never been, but everyone I know who has been, always says how lovely it is, so looking forward to seeing what its like.

 Xx 

Hi Introuble, as I have advanced prostate cancer, I can't help with your mantle cell lymphoma, my friend, all I can suggest is you read Macmillan's information on MCL, just type it into the search box at the top of the page. Also I know you've joined the hodgkin lymphoma forum, but there is the Mantle cell lymphoma forum you can join as well, not forgetting the wonderful helpline 0808 808 0000. 

best wishes 

Eddie xx 

Thanks Eddie-good advice about the skin, absolutely. I have been in hospital and doctors have commented on my skin because they could tell immediately I was a user of hot water bottles! 

I’m very careful myself as I’m aware about the risk, but thank you for highlighting it to others. I ended up in a&e in Worksop once with a nasty burn on my leg-not from the bottle itself, but from spilling the water out of it over myself! I was having chemo at the time, so ended up on a drip for a time. 

Sarah xx

Ok thanks