Awake and up all night

  • 7060 replies
  • 318 subscribers
  • 472957 views

Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • I've not read it for decades but loved it, and Dandy, when I was a 'wee bairn'. I must have retained a lot of the comic's language from way back, like 'guffaw' 'spiffing' 'balderdash' etc and it's coming back out on here, in my dotage no less. Bunty was my favourite comic though, especially when a free gift was inside or stuck on the front cover. Halcyon days xxx

  • Hi Gilly, I'm well rested thank you, but wow I'm away for a day or so and we get so many wonderful new guys joining the thread, sad but fab, you know what I mean. and moving on is difficult but it needn't mean good bye my friend, and that's wonderful you can step straight into a new course, what a lovely birthday surprise for LOH, and you in getting him behind that wheel again, its lovely to hear what a super day his birthday was, and fish and chips yummy and well deserved, not sure what Jenny would think.

    Yes I  remembered Leek, sometimes my brain goes to sleep before me, well I  had a call from CT earlier today for a scan on Friday 17th, late afternoon, bollocks me thinks, 2 days off our trip to the Scilly's, I'm letting family know, when CT call back,"we can do your scan 8am on the 15th and your DEXA straight after, happy days, well it would be if Sheila and my aunties hadn't buggered off to the Scilly's this morning, another little walk with Poppy and Cassie I think, they didn't desert me.

    love Eddie and dogs xx

  • Hi Steve, isn't it on the curriculum in Geordieland, to paint the town red, Donny was a fab place for a night out, before the moron's moved in, as was Newcastle and we'd pop up occasionally, but never really got into the local Broon, but the people were really friendlyWink, even to Lesley with her Durham accent, not so keen on Mackems.

    Eddie xx

  • Aw Eddie, do you ever get a break from the infernal appointments getting in the way? It won't stop you going to the Scillys will it, even though all the girls have already cleared off? Yep, get the hounds out for a walk as they're loyal, especially when you dish up their grub I'll bet, and then relax as I fret you do too much.

    I doubt Jenny thought the fish and chips were sinful cos when I told her, she got busy telling us she'd had a good helping herself on her recent trip to Wales. She did right.

    I know what you mean about our new friends joining us, the reason behind it and all that, but aren't they smashing? Being able to put some of their worries aside and join in with the banter is fab. Well LOH has just started watching the rugby final so that's my cue to make the tea - summat quick like ham salad will fit the bill. Probably see you later on Superman Eddie xxxJoy

  • Hi Linda, what a cracking, open, and honest post, which I can fully relate to my friend, though I wasn't fortunate in finding the community until a year after my diagnosis in May 2022, joining the prostate forum, a wonderful group, rightly voted the best prostate forum in the world, though I occasionally post on it, I've moved on.

    And having 15 years in healthcare behind me, over 5 in palliative/cancer care, I hope, helps me, "welcome," fellow warriors, who never wanted to find themselves here, though this is a wonderful thread, added to greatly by new arrivals, and many of us do sleep OK, broken sleep is my minor problem, but after 18 months on 90 minutes a night, I'm happy where I am.

    That's great news re, favourable genetics, but the long delay in diagnosis must have been difficult, I can imagine you had some unwanted thoughts at times, and thankfully despite the delays, you have a favourable outlook, and I'm ok with tests/scans and waiting for results, had a NM Bone scan last Tuesday and a Dexa & CT text Wednesday, and managed to fit a couple of holidays around them, and I'll likely be away when they post the results, I know this is unusual, but having serious health issues all my life means you just get on with living.

    I'm so sorry to hear about your sister, cancer truly is an awful disease, and I hope she's responding well to treatment, and please pass on my best wishes, my eldest daughter and her mum have both recently been through cancer, sarcoma of the breast and ovarian respectively, both weren't given a good prognosis, but have defied the odds, so I understand the impact cancer has on families my friend, and also how important it is to live your life the best way you can.

    It's lovely to know you have a family, they do make such a difference, brightening up the dark days, and grandkids should be available on prescription, I've never married, and have only had two partners my whole life, who are both a huge part of my life, as are our 4 kids and 12 grandkids.

    love Eddie and family xx 

  • Eddie, we couldn't paint the town red and white (Sunderland).  The morons seem to have moved in everywhere!... allegedly of course!

    I think I am getting old!

    Enjoy the Scilly Isles.

    Steve (SteveCam)

  • Hi Gilly, it was a good day today regarding appointments, having my DEXA moved to earlier in the day following my CT, means an extra day in the Scilly'sGrinning, though I do have to come home for my cardiology MOT and consultations on the 27th,"too important to miss," and I will be returning to the Scilly's with my two closest friends from the hospice, so will need a refresher course on oxygen, and all supplies have already been ordered and will be sent to the cottage next week.

    I've just had the dogs out for the last time today, so that's me till bedtime, and good on Jenny tucking into fish and chips, your recent talk about it, persuaded me into having a fish supper, but why do they give you enough chips for 3 people.

    Awww won't it be great when we don't need places like these, and cancer is a memory, though they are such a wonderful place to get away from the realities of cancer, to have a laugh, chat, virtual hug, and to support one another.

    Enjoy your salad, and the rugby, is LOH rooting for Hull?, well my idiot little brother has just turned up, he's been to Lisbon to do the Caminho Portuguese, and come back with a sore leg expecting Screamme sympathy, I'll send him round to you lol, I suppose I'll have to listen to his holiday tales for a couple of hoursScream.

    love Eddie, dogs and idiot brother xx

  • Well Steve, red and white are Donny Rovers colours, but a very rare sight, but not as rare as the low IQ brigade who spoil the town for everyone. Cheers my friend, we love the Scilly's, I don't know if it's your thing, but it's a fab place to get away from things.

    Eddie xx

  • Evening Eddie, dogs and idiot brother. I looked up DEXA and found it's for checking bone density to detect osteoporosis etc. So now I know. This is what I'm like, always researching things. Anyway, good news that the Scillys trip hasn't been mucked up too much but do you fly with all the to-ing and fr-oing or use trains, and is the oxygen for your hospice chums? I've no idea how you cope with so much travel cos I couldn't. You should have shared the excess chips with the hounds. Lol!

    Aye, it will be the best thing in the world when cancer becomes a distant memory but it'll never be in our time my friend. But as you say, it's given this fab site to us and an abundance of lovely people we'd never have known existed, and those at the Centres and all the offshoots of those. It does help if you're chatty and luckily I've enough of that for LOH and myself - too much sometimes as I never know when to put a lid on it! He was going for Wigan for some reason, so I asked if he'd got a grudge, if Hull had thrashed Rhinos at some point, but apparently not. Stumped on that one, him going over to the wrong side of the Pennines? I'm sure you'll be able to feign interest in junior's tales of Lisbon but having our Sian living ?? miles from there is the nearest I'll ever get. But she has sent us some gorgeous photos of a place her and Darren visited a few weeks ago and it was seriously spectacular. No Eddie, kindly refrain from sending little bro round as I know zilch about sore legs - bed sores yes, but thankfully that was in January after LOH's long hospital stay that caused that delightful little number.

    I really must quit with these marathon posts, so sending hugs to you and the dogs and an extra one for kid brother xxx

  • there is one problem painting with illuminous pains - is you spill on you - we can all see you in the dark bit like our days some are so so dark but put on all the lights in the house and say to yourself - what I was told - i am here and everyday is just as bad as the last - BUT the next day might be just a little better

    seems to me - new to this site there are a lot of friends apart from your family who completely support

    PS can you do a painting of a windmill - because I believe we all think at times our life is going around in circles 

    whatever look after yourself with support from family and us here xxxxxxxxx