My Dads terminal diagnosis

FormerMember
FormerMember
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My Dad has Terminal Cholangiocarcinoma...his skin is now the colour of english mustard.. It's just heartbreaking to see him so weak ..he sleeps most of the time.. His consultant has said he may have 2 weeks.. is this the case 

  • Hi and welcome to the online community

    I'm sorry to read that your dad has terminal cancer. It must be a very difficult time for the whole family.

    As the community is divided up into groups, I'm going to recommend that you join the supporting someone with incurable cancer group which is a safe and supportive place to discuss your emotions as well as practical issues around palliative care.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi , I’m sorry to hear of your Dad’s cancer and how understandably heart broken you feel on hearing the news from his consultant. I have a different type of cancer from your Dad, and I would love to say that your consultant view is a possible outcome perhaps based on his experience or statistics, but I don’t really know as I’m not a medical person and I’m trying to work out if this is a rhetorical question as your mind searches for answers and hopes for the best, as we all do or if you need some input from people who have experience of bile duct cancer/Cholangiocarcinoma and if I could direct you to that group.

     I’m pausing now to give a gentle virtual hug.

    I thought I’d welcome you to the online community as I can see this is your first post, and you’ve bravely hit the ground running into a general chat group and I don’t think the your post is asking a general Chatty type question, but you are asking a very hard question that I can imagine has been very difficult for you to voice and needs care answering, and needs much more information from yourself, to maybe give a straightforward answer. 

    I have incurable cancer originally given a prognosis back in 2015 of 12 months, I’ve learnt to be hopefully, but in those years I have had friends and relative who have sadly passed away, so you might have heard the expression hope for the best and prepare for the worst. 

    Macmillan’s experts could help you talk things through on the support line 0808 808 0000 or you could put a question to them in the ask an expert section, I’ll put the link below.

    https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask_a_nurse/discussions

    The online community is where people living with cancer or affected by it due to their loved ones, can get together and support each other. It’s split into groups so that you can join and talk to others in a similar situation to yourself with a few general overlap groups like this one.

    I was thinking that the group for your Dads cancer may be useful for you to 

    https://community.macmillan.org.uk/cancer_types/bile-duct-cancer/discussions

    and as you are talking about your Dad possibly being near the end of his life the group, supporting someone with incurable cancer.

    https://community.macmillan.org.uk/cancer_experiences/supporting_someone_with_incurable_cancer/discussions

    The information and support pages can I find be really helpful when working through difficult feeling and information. The link below takes you to info on emotional support and a section on what to expect at the end of life.

    https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone

    I hope some of this long reply helps

    Take care KT

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for your reply and advice..  I will look at the groups.. 

    Kind regards xx 

  • FormerMember
    FormerMember

    Hi Nelly,if it is the case then it is a time to prepare yourself for the inevitable but also remember the length of time given by consultants are only estimates and your Dad may live much longer...I hope this helps.