My beautiful man fought the good fight for 8 months. We didn’t get a full nights sleep the whole time because the steroids kept him awake but we fought the cancer  together & his treatment was going well. We made the most of the time together. I still managed a couple of mornings of work. Unfortunately the treatment stopped working but with pain medication he was still positive although we knew the time would come sooner than we were hoping for. We never spoke about the end. We just plodded along made some nice memories. The last 2 weeks before he passed was hard, he had a back pain & diarrhoea & I couldn’t leave him as he needed extra help, which of course I was happy to do. 
we were still bickering & sometimes it became a bit nasty as we were both stressed out completely exhausted. The guilt from things said out of pure exhaustion from both of us can never be taken back & although I know we would have forgiven each other it is killing me. The day before he passed we were bickering because he thought I wanted to put & leave him in hospital because it would be easier, I told him I wanted him home with me but his worse fear was dying in bed full of drugs, I hope he knew I would never have done that to him. On the morning of his passing his back pain was under control with morphine & his diarrhoea was sorted, we had arranged to go to his Mums 150 mile journey when I got back from a couple of hours work. All seemed well. He had seen our nieces the day before (the loves of his life), he had eaten his favourite food for the first time in 2 weeks, he was sat up when I left. He was going to have a little nap while I was out, I got back & he had passed. Thankfully for him not in bed but bless him. More guilt for leaving him although I do think he was ready to go, I just wish I had known. I just don’t understand how you spend everyday for 25 with someone & they are just not there. It all seems a bit pointless now & the pain is overwhelming. 
Aunty's Debs
Bless you it's hard isn't it I laid with Simon in a cuddle bed quite scary laying next to my darling for 2 night like you of course he was dying but I was still in denial. When he heart stopped under my hand I asked the nurse has he gone she said not quite then the horrible death noise trust be it wasn't pleasant I just wanted to run out of the room and go home it wasn't Simon in the end now I wish I stayed longer strange isn't it hindsight is a wonderful thing they say I'm sure your Andrew didn't want to put you through that pain sending hugs
I have so many guilt trips I am putting myself through. Have been for the last year. 
From not suggesting he see his GP sooner, saying the swelling was probably just an infection (and to be fair to myself the 2 people he also asked are both medics and they said infection). 
To being annoyed when he didn’t scoff down what I cooked. Not stopping to think that he was having trouble swallowing.  
To the biggy. 
After his heavy, noisy breathing was keeping me awake, saying under my breath several times “God, would you stop that noise!
He must have heard me at one point as he got up from the chair he was trying to sleep in and said he was going to try lying down to help with the noise so I could get some rest. 
He was due to start chemo the next day.  
After 5 mins lying down he got up saying he couldn’t breath. 
And after 20 horrific, truely horrific, panicky scary minutes he suddenly went. 
See. 
My fault for wishing his noisy breathing to stop. 
Well it did. Didn’t it. 
I just didn’t realise, though of course I realise it now, it was the agonal breathing of someone in the throws of passing.
God, this is so shitty and messed up.
1 year ago today (the 25th) was the last full day we had together. 
And it started with his oncologist calling to say when we went to the hospital the next day for my beautiful Valen’s first chemo + trial drugs, he was to have a head scan as the cancer had spread to his brain along with all the other places. 
Gee. Thanks mate. Couldn’t have waited to tell us 24 hours when you saw us face to face. 
Seeing the last spark of hope die in my loves eyes.
Sorry for the long post. 
Needed to get that off my chest.
Hi there Mrs VT (and others).Please don't say sorry for posting here.
We know what you are going through. 1 year and 10 days since my Anne was taken from me.
Its now 03:00, can't sleep, the screaming nightmares are back. Its horrible.
I think most of us, if not all, have those terrible "What if", "I wish that I hadn't / I wish I had said" thoughts.
It is NOT your fault. We all have awful memories, memories of what what might have been, the dreams we had, that this awful disease has ripped from us.
We, we unhappy crew, members of the club we never wanted to be part of, we understand.
I wish I had the words to help you. I wish I had the words to help me. Just know I am thinking of you all, wishing you and every one here all the best. I know that I have quoted this before, but the song that helps me, I am Not Okay by Home Free....
I am not okay,
 I'm barely getting by,
 I'm losing track of days
 And losing sleep at night
 I am not okay
 I'm hanging on the rails
 So if I say I'm fine
 Just know I learned to hide it well.
I know, I can't be the only one
 Who's holding on for dear life.
But God knows, I know
 When it's all said and done
 I'm not okay
 But it's all gonna be alright
 It's not okay
 But we're all gonna be alright
....... Its about the only thing that helps me in the wee small hours.
Chris
You never need to apologise. We are here to get these things off our chests.
I so wish that none of us had to go through any of this but I am so relieved (sorry I don’t know what other word to use) that we were not the only couple who had harsh words born of frustration & fear, from all the posts I have read no one mentions this part of their journey, I thought I was the only one who was feeling the guilt of words they wish they hadn’t said.We all know it was the cancers fault for it all but because you can’t actually see it (only the devastating effects) you take it out on each other. Losing Andrew is the most devastating thing in my life but I am so glad he’s not in pain anymore but the guilt is something I find impossible to come to terms with, this is still very new for me but your post has helped me to breathe out. I will always miss him & I’m good with that, I’m hoping to work through my feelings of guilt now. I have my first group counselling tomorrow THANK YOU SO MUCH 
 
Love the song words, so all of us.
‘I think most of us, if not all, have those terrible "What if", "I wish that I hadn't / I wish I had said’
Thank you for this, I now do not feel so alone anymore  
I remember being so furious with my husband. He would not go to the Doctor’s, as he insisted it was Long Covid. I knew differently. The weight loss was so fast, and he was dropping weight like a stone. I remember shrieking at him like a fish wife, over those three month’s. This was pre-diagnosis, and I thought he still had a chance. We had such rows. He was so stubborn, and I was so angry with him. Later, I also remember telling him we needed to go to A & E, as his temperature was over 103 degrees. Again, I lost my temper as he didn’t want to go. It helps to remember that I was exhausted as well, and my patience was tested beyond my limits. I loved him deeply, and felt so frustrated with him. I don’t feel guilty as I know I gave every fibre of my being, as I know all of you did too. He knew how much I loved him, and always will. Hugs to all, Kate. Xxx
Gosh reading all of this brings other thoughts that come into my head and don't have the answers to and of course the guilt I am feeling. Simon and I was in the hospice for a week he was in agony he called the nurses his angels never complained only to be I was the one fetching and pressing the button for help day and night he didn't want to bother them. The guilt I carry is this we had one night nurse or was very sharp no bed side care the alarm kept on going because Simon had terminal agitation and was on off bed moving about which kept setting the alarm off she would come in snapping stop moving at 1 point I even shouted he wasn't moving the machine is faulty and yes she did see it was. After 3 nights and days no sleep knocking things off tray just agitated I begged this nurse please help him sleep and remembered her saying are you agitated Simon gave him something didn't get chance to talk to each other again. I blame her for not explaining this next injection he will be in coma we could have said goodbye blame myself he passed 2 days later the only thing I tell myself I laid with him and kept telling him I've got you and I love you but kept shouting please wake up tell me you love me. These thoughts hopefully will leave us all
O Kate, thanks for that, I did give him everything despite my frustration, tiredness, anger. I just need to convince myself he would have forgiven me, I know he would have but I can only feel the guilt at the moment. Hugs back to you ️
I believe he would have heard you telling him you loved him. Apparently, hearing is the last sense to go. That nurse sounds horrible, no wonder you were upset. Kate.xxx
I am so sorry for everyone’s pain. We all obviously loved our people so much, cancer is so cruel & doesn’t  just destroy the person with it but the ones left behind. So many different stories on here, I guess it doesn’t matter how or when they go it would always have be too soon, Andrew’s passing was unexpected to me but even being prepared wouldn’t have made it any easier I realise now. 
Life can be so beautiful & so unkind. I have no answers but am so glad to have a community of people that understand how I feel. 
Rant on everyone & never say sorry. We all have each others backs ️
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