I lost my mother in my teenage years to this cruel disease, and watched it slowly take her away and break her, mine, and my little sister’s heart. My dad wasn’t great after she died (understatement) but we have improved relationship recently but he has been diagnosed now too 6 months ago and is deteriorating rapidly. He has a really tónix partner and I’m having to take on lots of caring responsibilities and he leans on me a lot for emotional support. I feel so helpless.I feel so angry all the time. It’s like a nightmare, worst possible fear imaginable, a decade apart, Watching both my parents have major , seemingly barbaric, operations that destroyed their quality of life is crushing me. I’m experiencing all my “friends” disappear for the second time. At least before I could understand more as I was a child but I think it is realy true tha people show their true colours in your darkest time. I miss my mum. I fear for my dad. I hate these disease. Sending love to any bereaved teenagers or anyone struggling right now. I hope we all can find some peace one day.
