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I’m writing this blog as a sort of way of clearing my head, and not wanting to put it in the discussions section, but forgive me as I’m not used to blog writing. I can’t say this is my first blog as back in April I was asked to contribute something for Mays Melanoma awareness month, and I think it’s easier if I just give the link to that blog.
Back home after having stent fitted. I had to stay in hospital overnight for them get my pain under control. I was on a specialist cancer ward, so you would think that they would know what the were doing. Thankfully the surgical and anaesthetic teams were brilliant and have done a very good job under testing conditions. Unfortunately the nursing care was a total shambles. I was left in agony all night, as the nursing staff were unable or unqualified to adjust my pain killers, even though it was obvious...
I haven’t added to my blog for a while - not because I haven’t had a laugh along the way but because after 25 days of radiotherapy plus the weekly chemo dose I have been too shattered to write it down.
Today should have been my final radiotherapy session but due to machine breakdown yesterday was cancelled. It felt like a bitter blow but I got over it and now have a Saturday session so tomorrow will be the final one. I cannot wait.
The team looking after me each day have been lovely,...
After the first cycle which was really tough, the oncologist reduced the dose. So the second cycle was much easier and although the first week was hard because of the nausea I was able to go out for a walk every day and my energy levels were better.
I also knew better what to expect and knew it would pass.
The hardest part was dealing with the hair loss. I didn’t lose my hair when I had chemo eleven years ago. I found it really upsetting to see so much hair on my clothes and hairbrush every...
hello My 6th post.
it has now been 9 month since I had nanonife surgery at the princess grace hospital London.
All I have done since my op is to simply return to normal life but I have tried to get a fresh blood test done to check my PSA level every 2 months or so.
one week ago just at the start of November 2018 I had my latest PSA blood test and my result have been very positive. It came in at ( 1 ) Now that is a drop from a peak of ( 17 ) in January 2018. I spoke to my consultant concerning these...
Of crawling up the stairs to the loo.
Doing your business.
Wiping.
Finding blood.
Then having no idea if it is coming from your urethra or your vagina - or heck, maybe both just to be extra special. Both are possible at the moment, neither should be happening, one I'm on tablets to stop happening.
How ridiculous!
I posted this in The Scrapbook today and thought I'd put it here as well...
After playing my ukulele I often do some very simple and repetitive strums for several minutes as a kind of meditation.
Yesterday I was alternating Am to A chords and today tried it again with some vocalisation, harmonising, something I had not tried before in this way. I found it quite expressive and will definitely be doing more.
Here's a link to the recording (3 mins 51 seconds)
It's a while since I posted anything other than music stuff. I suppose I want to say, "I'm still here". I update my profile bio now and then, but I felt like posting here today, for no particular reason. Maybe this will help release something, some thought or idea or emotion, that's trapped inside me.
Like a lot of "incurables", I have no real idea how long I have left. About a year ago, my visits to my oncologist changed from 6-monthly to 2-monthly... I reckon that was...
I thought it was about time I brought this blog up to date.
I was originally diagnosed in February 2017. I had a TURBT operation on 1 March 2017. All went well with this and, at a follow up Cystoscopy on 6 June 2017 I was clear of cancer. Sadly at a further cystoscopy on 21 March 2018 a further small growth was found. A second TURBT was done on 4 April 2018 and again all OK. At my next cystoscopy on 17 July 2018 several very small tumours were found. I went in as a day patient first on 4 August 2018...
The week before my treatment went really well and I felt loads better so if you are on the same journey take heart the side effects do pass so that you are ready to start again 3 weeks later. I had my bloods done on the Monday and they were all normal. I also saw my Oncologist and he was happy for me to continue. My white blood cell count was back in the normal range for the first time since my diagnoses of CLL so the Epirubicin and Cyclophosphamide are helping to control that too. I had my treatment...
