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Right I'm off to London to have some radiotherapy which is a new experience for me, i will be going every working day for 4 weeks so I will become a commuter. My new fridge and freezer are in and woking and my car passed its MOT first time so thats nice! Got my book in my backpack for reading on the train, currently reading Perdita the autobiography of Mary Robinson an eighteenth century actress, my what they got up to back then!! :D I love history and historical places so going to London used...
I got the FCR WRONG
It should have been Fludarabine, cyclophosphamide and ritixumab and not as stated below. Thanks
The big issue at home is Gail, she has come down with quite a bad flu, in all the time we have been together...
As i ve said in my blog intro, an op to remove cancer in my mouth didnt work, so then had 6 and a half weeks of chemo and radio theropey, which ended nearly 2 weeks ago. So now the afercare!!!! none! During treatment was told all about macmillan but so far have not met or seen a macmillan nurse, as for my own GP pratice district nurses ,all they want to do is phone me to see how i am, as their to busy!!!. So when i see all these ads on tv about people like me with cancer , i now know its just lies...
Just returned from the docs for bloods. My WBC is now 6.3 so now classed in the normal range, the doc agreed this is a good start and now it's the task of getting the nasty CLL cells out of the bone marrow.
It was a good visit overall and I had a good chat with the doc about the future and the possibilities dependant on the outcome of this round of chemo and when it comes then next round. I have to say although I am a very positive person the discussion did give me more...
I've gone back to work full time 37.5 hours a week and i can barely keep my eyes open when i get home. I even go to the gym and my stamina just wont improve at all. My doctor tells me it will be like this until i finish all my treatment but i want to have my stamina back now not in a year. I enjoy my life at the moment. Work is great and would be incredible if i wasn't so tired. I go to the gym when i feel like i have some energy, force myself if i have to, i play roller derby twice a week and nothing...
Weird isn't it how you can be so ill and still life goes on I am waiting for my new fridge and freezer to be delivered, normally I would be given the late slot and would be upset that I had to wait around, now that I have a stinking cold and my partner is in bed with the flu I have been given the 7 to 11 slot so I had to get up dead early this morning. I know they will probably come nearer 11 than 7 but can't take the risk, partner is absolutely laid up or she would be doing it and I had...
