Blogs

Latest blog updates

• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  W J 3 hours ago
• To Hop-on or Hop-off is the question?

  Mr U 16 hours ago
• Cool Cap Relief

  TerryB 1 day ago
• Living with Desdemona

  Desdemona 2 days ago
• Today my coffee tastes like Christmas in Costa Rica

  Beesuit 3 days ago
• One Step At A Time

  Phild26 3 days ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Dylan - Online Community Team 5 days ago
• Multiple Myeloma

  Tess123 15 days ago
• Mumofcancer

  Mumofcancer 21 days ago
• Cycle 19 and not working anymore

  Emotions 23 days ago

Latest blog posts

• AML Second Stem Cell Transplant

  Admission and first couple of days

  I was required to come into the Clinic for a pre admission Blood test early on 24th March followed by insertion of a Hickman line later that morning in the Vascular Clinic. This was not something I was  looking forward to as two years ago the pr...

  Alron 5 months ago
• AML Second Stem Cell Transplant

  Lead up to Second Transplant

  One drawback of this Chemo treatment was cost, the NHS will only allow Venetoclax to be used free for a first transplant with any further treatments to be paid for and it not a small amount (details can be found in the NICE guidelines for medicine co...

  Alron 5 months ago
• AML Second Stem Cell Transplant

  First Transplant Recovery and Failure

  After my first transplant I was discharged earlier than I thought I would be on June 7th 2024, it was good to be home but unnerving as it felt that I was no longer in the safe enviroment of the hospital and access to all the expertise I had experienc...

  Alron 5 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 344: I should have some Oramorph more often.

  Post 344: I should have some Oramorph more often. Eggs are the focus as Easter nears. Waistbands that have been tightened since the New Year resolutions are now sorely tempted and slackened by the chocolate bunnies and thick, crunchy eggs on offer r...

  Mr U 5 months ago
• AML Second Stem Cell Transplant

  Chemotherapy and slow recovery.

  From September onwards I was on 5/2 Chemotherapy (five days on two off and two back on) Azacitdine and 14 days Venetoclax running together with then two weeks rest then another round of chemo to be repeated for the next few months. I was also recover...

  Alron 5 months ago
• AML Second Stem Cell Transplant

  Background to my story

  Hi, my name is Alan and I would like to share my AML story including two stem cell transplants so that  others might find out some information to help on their Cancer journey. I will be writing this in almost real time as I am just starting my s...

  Alron 5 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 343: Lost the hour, lost the plot.

  Post 343: Lost the hour, lost the plot. Our youngest son’s arrival was indeed a welcome one, but without his fiancée or the huge pup Byron, it was not going to be a big family meet-up. However, as I opened the door to him and he stepped...

  Mr U 5 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 342: Homeward bound.

  Post 342: Homeward bound. Getting up is always a mixed experience on the last day of any holiday, but leaving this comfy profiling bed would be interesting. The car was packed and the cottage swept clear of our belongings, which up until late last ...

  Mr U 5 months ago
• 

  Community News

  Cancer treatment - Living with a PICC line

  Do you have questions about living with a PICC line? The Online Community is a great place to hear from others about their experiences. You can also ask clinical questions to our Cancer Information Nurse Specialists.

  In this blog, we’re highlighting conversations from the Online Community about PICC lines, and how you can take part.

  Getting a PICC line fitted

  For many members, the idea of having a PICC line fitted can feel worrying at first. In the Breast cancer forum, some members shared that...

  Dylan - Online Community Team 5 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 341: Another restful day in a great bed.

  Post 341: Another restful day in a great bed. Tomorrow we leave here with mixed feelings, but better knowledge about the profiling bed and what it can do for me. Another bright morning, but I’m not going to venture out. The lanes are scary, a...

  Mr U 5 months ago