Misunderstood

1 minute read time.

They make positive signs to hang on the walls at oncology about what cancer can’t take from you. The truth is it can take everything. I sincerely think the world has disconnected. At least I know my world has. Currently fighting active cancer fractures and holes in the bones. Last treatment caused serious side effects and recently turned down another chemotherapy option to try a targeted therapy. My mind body and energy have been in fight mode for months just trying to survive with cancer spreading. To add to my stress additional health issues are taking place. And my daughter in law decided to tell me my demeanor was weird I was weird and I said all the wrong things all the time. My entire existence has been loving and supporting my sons so that everything was okay when my time came. I love my family so much and I am being told I am terrible and have no love. I’m stage 4 breast Mets in the bones 8 years. She doesn’t recognize what living in pain for years does to the brain. What extreme exhaustion can do to forming clear responses or maybe if anyone checked to see what I needed ever, I might exude a healthier version of myself. Cancer has put me down and I am so sad at the lack of respect. No understanding, empathy or support. What cancer will take even if you have faith, prayer, meditation, healthy diet….Cancer has taken my energy, I am exhausted no matter the circumstances, my body, my mind, sometimes my mobility, sense of self, expressing myself clearly, loss of words and memories, a sense of security, finances, clarity, productivity and now it’s destroying my family because I am challenged with obstacles that appear to be misunderstood. My heart is so heavy.
I will continue to be the best imperfect version of me that I am while remembering what a badass I have been through this entire cancer battle and there have been many obstacles. I will pray about this situation and I won’t lose sight of God and my faith in Him. 

Madiso
  • Hello  

    Thank you for your blog. I totally understand where you are coming from. I am 4.5 years into my personal cancer journey and in that time find the only people who truly understand are those with a cancer diagnosis themselves.

    Cancer can take everything from you but it does it slowly sometimes without you even noticing - it changes you and everything you were in the past - but it's not you - it's the cancer eating away at what you were and you trying to go back to the old "me". The majority of "outsiders" think this is just you changing and has nothing to do with the cancer - most of the time they don't even notice changes to your body.

    You say you have breast cancer. Are you aware on the Community, we have a breast cancer group? Why not join that group to meet others in the same or similar situation - here's the link you need to join that group:

    Breast cancer forum 

    If you do need any further help in navigation the Community, please do get back to me.

    I wish you well moving forward and hope things get better for you both with your cancer journey and with your extended family. Remember  - "they don't get it".

    Best wishes - Brian.

  • Hi  

    It sounds like you have been living with secondary cancer for a long time. First of all congratulations on being a survivor. I am 4 years into my own journey with secondary breast cancer. I completely understand how you must feel. I think those we live with or are close to see we are still here and forget that it never goes away, will never get better, and we have to live with what the disease or treatments have done to us day after day. As  says, it’s worth joining our breast cancer forums, to get more support from people in a similar situation. Not everyone reads the blogs, although they are a great way of writing about our experiences - my own blog, A trip with triple negative breast cancer is also on this site.

    i am one of the Community. Hampions on the various breast cancer forums. As well as the Breast cancer forum  we also have a Secondary breast cancer forum  and a Secondary bone cancer forum you might like to join. The former for anyone with secondary breast cancer and the latter for anyone with cancer of any type that has spread to the bones.