Just received my appointment with the surgeon and the radiologist. I looked them up online and they are both at the top of their profession. That makes me feel better, I can tell you. 22nd August which is about ten days time. This shit gets realer all the time. Having seen their credentials I feel better about it all. My surgeon is leading the field in robotic surgery and my radiologist is a leader in his field. I feel…
Right. I've decided. No chemotherapy because at present there is no tumour to shrink and my bladder is coming out. I see no point in chemotherapy. I feel it would weaken me for no good reason before major surgery. Although a neobladder sounds great in order to have one they would have to leave my uretha in and, my cancer being very aggressive, I think I'd rather get rid of the lot.
My nurse rang with a cancellation…
I don't think I will have chemo. It doesn't work if you have 'squamous differentiation' so seems pointless, especially as the bladder is coming out. Surely it would weaken me before the op? I don't like the fact that the bag goes on your stomach. I was ok with the idea when I thought it would be on my leg. I guess I will need all new clothes to accommodate it. How will I afford it. And the bag looked smaller than the…
Well it's really good news and bad news. The good news is there was only the one tumour which was completely removed during the op and it hasn't spread anywhere. So I won't die. The bad news is that it was malignant so it will come back. Stage 3, Grade 3, muscle invasive. So I have to have my bladder out. I'll be going for a stoma - the thought of self-catheterising does not appeal. It won't be for a few weeks and I'll…
I just noticed a sentence on my discharge letter.
'EUS: Retrocoele grade 2, palpable mass right side pre resection, persisting induration post resection ? muscle invasive'
Retrocoele is a prolapse of the bowel to the vaginal wall. Basically it's pushing against the wall.
Induration is sclerosis or hardening of tissue.
I have no idea what this means to any treatment I may be given. I guess I'll find out tomorrow…
