rosie0207

Has any one got a parastomal hernia. I have one after radical cyctestomy and it is causing back ache and discomfort when I walk. I just wondered if anyone has one how are they coping with it. Any tips wou;ld be great. Thanks in advance.

Had r/c done spent 2 days icu then went back to ward, then I caght pnuemonia and ended up back in intensive care and on life support for 10 days. Been home 5 days and feel so weak food tasts awful and I have a terrible thirst. I dont know if its because I was fed through tubes for a few weeks but nothing tastes right. I would love a cup of tea but it tastes awful. Has anyone got any tips for this if so I would be grateful…

Well I was almost ready to go in for my RC tomorrow, got up early just so I could have a cup of tea as they told me not to eat all day and drink only clear liquid or strained soup which I dont like, had pre assesment, got marked up for where the bag is going, felt really anxious and then I got a phone call to say they have to postpone it till next friday. Dont know if Im relieved or not. I had all my house in order well…

got results from mri today, told cancer hasnt spread and told more about my op on 25th. Feel good that it hasnt spread but bit scared of how close my op is.Cant remember half what specialist told me, had mixed emotions. Going to keep busy now and not think about it. No more hospital till next week so I am going to put a blank mind to my bladder and think about positive things.

Had MRI today to see if cancer has spread before RC in late feb. Results next week. Glad thats over. I asked for a sedative before which I was given but it didnt work as I take anti depressants and they did warn me it may not work. 45 minutes of sheer panic, the noise didnt bother me just the narrowness of the tunnel. They did allow me to keep most of my head out which helped.  Im glad I stuck it to the end though, at least…