Our journey from the start

  • Bye Bye BEACOPP!

    FormerMember
    FormerMember

    So today was the final hospital appointment for chemo for J, my brave soldier, who says he isn't brave because he hasn't chosen it, but IS brave because of the way he has handled it with such courage and grace and humour.

    Today was an emotional day. I went with him and felt euphoric and teary in a happy way.. He was so emotional too, happy, but also sad to be leaving behind the friends he has made in the wonderful…

  • It's not going to be the best christmas ever...or the worst....

    FormerMember
    FormerMember

    Being a forward thinker, it's been clear to me from pretty early on, that with J due to finish chemo in mid November we should know by christmas whether it has been successful or not. Lately there has been a lot of talk with friends and family about how it will be the best christmas ever. And i agree with them and secretly worry "or the worst"...

    All that changed this week though, when J's consultant dropped…

  • Equilibrium is restored and the usual chaos resumes...

    FormerMember
    FormerMember

    J is at the hospital right now starting round 5 BEACOPP and round 6 in total chemo. AKA the FINAL one!!! Yippee!! A bit more on that later, but first just wanted to say that things here are better. Last week I lost the plot and was living proof that "God only gives you what you can handle" is a right load of old codswallop.

    Anyway J has felt much better for the last four days and with that I've started to feel…

  • I can't seem to get a grip

    FormerMember
    FormerMember

    J is doing well post blood transfusion. His levels have gone from 7.7 to 9. So not a massive rise but enough to keep him going thank goodness.

    But me, I'm not doing so good. Something seems to have flipped. I'm not even pre-menstrual, but I just can't seem to get over my anxiety. Last week was so horrible, with our ruined weekend away and then coming back to j getting poorlier by day, and the kids being off and me having…

  • Who needs fake blood when you can have borrowed?

    FormerMember
    FormerMember

    Halloween seems like an undesirable day for a blood transfusion but that is what is happening right now for poor old J. His HB levels went down to 7.7 yesterday and his GP decided to take his action. His consultant is on holiday and apparently there is no consultant cover at the hospital. God only knows how this has been allowed to happen. But luckily his GP was there to organise it.

    Everyone says it will make him feel…