Neuroendocrine Cancer Awareness

  • Neuroendocrine Cancer - were you irritated by your misdiagnosis?

    Look on any site about Neuroendocrine Tumours (NETs) and you'll find the term IBS (Irritable Bowel Syndrome) frequently mentioned. That's because it's a common misdiagnosis for many before being formally diagnosed with NETs.

    But what exactly is IBS, why is it such a common misdiagnosis for many NET patients and how can these misdiagnoses be prevented or reduced in future?  I just spent a few hours doing an online…

  • Please vote for my blog

    Hi there - I've been nominated for 6 awards in the WEGO Health Activist Awards 2016.  The 6 categories are:

    Best in Show Blog

    Best in Show Facebook

    Best in Show Twitter

    Health Activist Hero

    Rookie of the Year

    Best Community

    Many of my blogs are on this community site and many of them reference back to Macmillan.  My home page also contains references to Macmillan who featured some of my blogs as a guest.  I hope you…

  • Neuroendocrine is not your average cancer but it can be pretty 'mean'

    Most people have perceptions of cancer in their heads, fairly fixed perceptions too.  They think about all the stuff they see daily on TV, in the main press, and people they know.  The 'big cancers' set the scene.

    Most doctors know about the big cancers.  They also know how to treat them, many of them have a fairly fixed regime of surgery/chemotherapy/radiotherapy.  Many survivors will have side effects…

  • Stop talking about it, just go do it!

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    Medicine!

    "yes, we must do this one day ......." and then we don't! We're all guilty of it aren't we?

    For years Chris and I have discussed travelling around the coast of Scotland and we're just back from a fantastic holiday where we saw some wonderful scenery. And we did the Edinburgh Tattoo on the way there! Yet another ....... "we must do this one day......."

    I've even…

  • Not every illness is visible

    I personally don’t see myself as ‘disabled’ but I do have an invisible illness. I’m fit, can walk for miles, I even look quite healthy.  However, I live with the consequences of Neuroendocrine Cancer. These consequences differ from person to person but I know that some people with this disease have even met the criteria to be officially classed as ‘disabled’ through government schemes.  Judging…