Neuroendocrine Cancer Awareness

  • The Invisible Neuroendocrine Tumor Patient Population

    The Invisible NET patient population

    I found some of the quotes from the recent NET SEER Database study very interesting.  The National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program is a comprehensive source of population-based information initiated in 1973 that is updated annually.  The NET study is formally titled “Trends in the Incidence, Prevalence, and Survival Outcomes in Patients With Neuroendocrine Tumors…

  • At home with Lanreotide

     The Somatuline 'reservoir' forming in the deep subcutaneous tissue[/caption]


    I think after 87 injections (as at 11 July 2017), I think it's safe to say I'm now 'at home' with Lanreotide (Somatuline Autogel - Somatuline Depot elsewhere).  I'm looking forward to celebrating my centenary 'butt dart' in a years time!


    I was fortunate enough to actually have the injection…

  • Living with Cancer – 6 tips for conquering fear

    Before I was diagnosed with cancer, my relationship with my health was fairly distant. I had minor irritants that seemed to come back now and then, nothing that was going to kill me. So I just put up with most of it and time was frequently a good healer. Occasionally, I would use medicine to speed up the healing or ask a doctor for advice. Even leading up to my diagnosis, this was my strategy despite some strange things…

  • The trouble with the NET (Part 3) – Miracle Cures

    Since I started blogging, I’ve had to become quite savvy at forming headlines for my posts as the wording can be a factor in whether someone reads it or not. A post picture can also influence.  There’s a third factor and that is credibility – I’d like to think I’ve worked hard to earn that level of trust in my ‘product’. I use the NET to talk about NETs!  I’m a genuine guy with…

  • Diagnosed with Neuroendocrine Cancer? 10 questions to ask your doctor

    On the day I was diagnosed, I hadn’t really thought about questions, the only one I actually remember asking was “how long do I have left to live” (I watch too many movies!).  On the day of diagnosis and a period beyond, people tend to feel emotions of shock, denial, anger and sadness, before going on to accept their situation.  Yes, I ‘googled’ but not a great deal really – although some things I…