Neuroendocrine Cancer Awareness

  • “You must be doing OK, you’ve not had chemotherapy”

    chemotherapy-hand-and-arm

    If there’s a word which is synonymous with cancer, it’s chemotherapy.  It’s what most people have in their mind when they are talking to a cancer patient…… ‘have you had chemotherapy’ or ‘will you be getting chemotherapy’.  I was nonchalantly asked by a friend some time ago ‘how did you get on with chemotherapy’ – he was surprised to hear I hadn’t had it despite my widespread disease.  Cue – lengthy explanation…

  • One every 2 hours

    neuroendocrine-cancer-incidence-rate-england

    I've made no secret of the fact that I don't believe Neuroendocrine Cancer is rare and you can read why in some detail in my blog Neuroendocrine Cancer - not as rare as you think.  Even today people are quoting SEER figures dated 2004 for today's incidence rates.  'Do the math' please!

    Meanwhile...... the figures from Public Health England (covering ~90% of UK), indicates there are now 4000…

  • Neuroendocrine Cancer – Exciting Times Ahead!

    In the last 12-24 months, there seems to have been announcement after announcement of new and/or upgraded/enhanced diagnostics and treatment types for Neuroendocrine Cancer.  Scans, radionuclide therapies, combination therapies, somatostatin analogues, biological therapies, etc.  Some of the announcements are just expansions of existing therapies having been approved in new (but significant) regions. Compared to some other…

  • Neuroendocrine Cancer: Hurry up and wait

    When I was diagnosed with metastatic Neuroendocrine Cancer on 26 July 2010, I just wanted them to hurry up and fix my body so I could get back to normal. That's what happens to cancer patients with distant metastases is it not? My expectations of what should happen turned out to be wildly inaccurate and in hindsight, I was also wildly naive. You see, with Neuroendocrine Cancer, particularly well-differentiated, low or…

  • Did you hear the one about the constipated NET Patient?

    It’s a joke right?  Not really and it’s not very funny either!

    NET Cancer is very heavily associated with diarrhea, either as a symptom of one of the NET Syndromes (yes there is more than one …..) or as a result of surgery or certain other treatments.  Occasionally, these symptoms and side effects can all combine to make it quite a nasty side effect; and for some a debilitating condition.

    In my blog on…