Ho diddly-hum. me again. Right. Why does it feel like I'm about to get married? Honestly, with 6 days left to go it feels like this is my last week of freedon, my last chance to get up to no good!! I feel I want to cram a billion things into the next few days, fun things, but the thing is I haven't got the energy, got bugger all money, and everyone else is at work...hmmmmph! Cant even have a sodding bath cos the…
Went to meet my team at RMH Fulham Rd last thursday and to get the lowdown. Good news is that all the results from my recent scans and tests came back clear, it hasn't spread. Phew! Bad news is that if i dont have the chemo there's a 90% it'll come back and if it does, the nasty little bugger will be incurable. It's a green light in my mind. It's all go as soon as a bed is ready, probably first week in April, which is…
I have Spindle Cell Rhabdomyosarcoma. It's rarer than I thought. I haven't met one person my age with it. To date I've had a surgical biopsy, followed by a wide local excision, PET, MUGA and CT scan, EDTA test and bone marrow biopsy all in the space of 7 weeks and all at the fantastic RMH Sutton. I wish I could have chemo at Sutton as I've made good friends there but I'm not allowed. Now everything lies in…
oh my christ. What a crap week. Oh dear. I'm losing the plot. Thankfully my salvation has come in the form of Zopiclone sleeping tabs. I slept for an amazing 7 or 8 hours last night. So, why do I still feel tired? Well what an emotional week it has been for me of late....Last thursday I felt like I'd won the lottery but lost my lottery ticket forever, honestly, that's how cut up i felt, only magnified x trillion billion…
