Rhab C Nesbitt...part 4

Less than one minute read time.

FormerMember

17 Mar 2011

oh my christ. What a crap week. Oh dear. I'm losing the plot. Thankfully my salvation has come in the form of Zopiclone sleeping tabs. I slept for an amazing 7 or 8 hours last night. So, why do I still feel tired? Well what an emotional week it has been for me of late....Last thursday I felt like I'd won the lottery but lost my lottery ticket forever, honestly, that's how cut up i felt, only magnified x trillion billion, and a bit!! They're great at the Marsden but like me, they haven't a clue what's going on. That's why I have to have a trillion scans. I had my PET scan on mon. Was nice to have Bach playing in the back ground but as per my facebook status ..."Experienced first hand the sensation of being buried alive in a coffin wearing a straight-jacket while being examined by aliens on a spaceship with Bach playing on the loud speakers. Would've been ok if it wasn't for an itch on my left buttock and right nostril. Now I know how Adrien Brody felt in The Jacket!!!" back soon xxx

FormerMember over 14 years ago

Hi Mei,

Dont worry we have all lost the plot at sometime or other. Its just part of life. Look after yourself.

Take care nd be safe Big Hugs Love Sarsfield.xx
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FormerMember over 14 years ago

kind nurse scratched my nose when I had my scan fortunately no problem with buttock! don't think she would have been so happy to do that
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FormerMember over 14 years ago

Thanks Sars. How you doing? xxx
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FormerMember over 14 years ago

Doh, I forgot there's a two way speaker in there! Well, now that I'm armed with that knowledge (thx m.dowding xx :) I may cope better with tomorrow's MUGA and EDTA scans at RMH. I don't think anything can prepare me for next week's bone marrow biop. At least I get to lay down for an hour after it during a CT scan. After my PET scan monday I'd finally had enough of receiving appointments letters and phonecalls from the hosp so I cancelled all the scans, the bone marrow thingy and christmas. Was not having a good day and needed to feel I had a bit of control. Atfer a trip to my local GP the next day and a chat to my nurse at RMH I re-instated my scans. I had a right wobbley moment to say the least, but I was reassured that I'm not the only one. Thing that's been doing my head in is being told that the cancer has been cut out now, that the surgery was successful...but as a precaution they want to offer me chemo, intraveneously over 3 nights every 3 weeks for 6 months starting in two weeks time because the nasty rare unmentionable word I still can't even pronounce will most likely come back very quickly. My leg hasn't even healed from my 2nd op. Is is ok to be exposing my body to all this radioactive and nuclear stuff while it's trying to heal? Am I going to grow a 3rd eyeball and have glow-in-the-dark teeth? I know, I know, I'm having a right moan, but there have been a lot of tears because I'm downright scared about the whole chemo thing. Please, is there anyone out there who can be frank with me and tell me what Ifosfamide and doxcubin is going to do to me. Is there anyone out there with my exact condition living with this?
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FormerMember over 14 years ago

Hi Mei,

Oh Im keeping not so bad things could be worse.If

I didnt have all my friends on the site to look out for me. Look after yourself.

Take care and be safe Big Hugs Love Sarsfield.xx
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