Life begins at 30.... Apparently!!

  • Bitter sweet, or sweet bitter

    FormerMember
    FormerMember

    Well the Mri results sound ok, Johns tumour is appearing to slowly die, hoever within the pockets, cysts are being replaced.

    If its not one thing its another! Steriods started and honestly, i think i need an atom bomb to get him up at a decent hour to take them as now to top it all there is sleepdistubances. Which convieniently happen only at night, and thus he sleeps all day.

    Im exhausted, fed up and bloody lonely…

  • where did this come from???

    FormerMember
    FormerMember

    Well i thought we were having a good week, then out of the blue John became devastated. He says its because i said its speech is becoming worse. Which i never even thought twice about, i guess im immune to the constant corrections and games of sharades. But im gutted.

    I went out yesterday for and hour, when i returned hes so tearful, hes never been like this before, its like a different John. If anything i have wished…

  • tensions building

    FormerMember
    FormerMember

    Following a relitavley quiet weekend, John has had his repeat MRI on tuesday. We are now on pins waiting to see the oncologist on friday afternoon for the news. I was hoping that maybe he would ring just to say its all ok, but no, not this time! Am i being paranoid!

    Ironically, John has been brilliant this week, but i dont want to get pulled into a false sense of security as last time i thought this and let the guard…

  • ups and downs

    FormerMember
    FormerMember

    Well today is not such a good day, the last couple of days have been good. John has been quite motivated and has managed a small amount of activity.

    Got a phonecall from the hospital yeasterday to confirm the next MRI post radiotherapy is on tuesday and results friday. But as always the false sense of security gets blown away as he has another siezure this morning, i  put him to bed and this is now the day, waiting,…

  • This is us

    FormerMember
    FormerMember

    Well ive always fancied the idea of blogging, so here goes, my spelling and grammar may be alot to be desired, but bear with me, i would like to voice our journey. I think if only to give me a bit of a sounding board, but also to hear from others.

    I met John in Brisbane three years ago, i was travelling with a friend and it was the end of our trip. I had a amazing time and never wanted to come home. But as we all know…