ups and downs

Less than one minute read time.

FormerMember

18 Nov 2009

Well today is not such a good day, the last couple of days have been good. John has been quite motivated and has managed a small amount of activity.

Got a phonecall from the hospital yeasterday to confirm the next MRI post radiotherapy is on tuesday and results friday. But as always the false sense of security gets blown away as he has another siezure this morning, i put him to bed and this is now the day, waiting, and checking frequntly until he feels better to get up.

I actually took the bull by the horns yesterday and arranged to go over to a friends in the afternoon but this is now out. i will ring her shorly to let her know and cringe at yet another arrangment dashed.

Thats the thing i really hate.... you just cant plan ahead, the just in case is always there.

So i will now play facebook scrabble, catch up on tellie, and house work, ooooh cant wait!!

FormerMember over 15 years ago

Callea,

Sorry your appointment has been postponed. My poor hubby went to work in the dark to get out early and take me to hospital for bloodtests. If they are ok, I get my last cycle of chemo (for now).

I play scrabble - well get beaten a lot - on facebook, I am hoping it will help keep what brain they left after surgery working!

Housework - I so wasn't born for that LOL

Hope John's seizure settle quickly.

Love & Strength

Debs xx
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FormerMember over 15 years ago

Hi Callea, sorry to hear that John hasn't been too good. Could your friend not come to you. I know its not the same, as you probably feel you want to change your 4 walls. It is hard taking care of your loved one, but somehow we find the strength within us to do it. I hope hen you have good days that you make the most of them. Take care and lots of love Julie.
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FormerMember over 15 years ago

Hi Callea. You've just added me as a friend and as I am a bit lost on these sites I saw a couple of your blogs. I don't often come across many people our age (I'm 29) going through this with their other half so in a weird way, it's comforting to know you're not the only one.

Things are tough this end too - my boyfriend's last scan shows all three of his tumours (recurrent medulloblastoma - an aggressive grade iv) have progressed and as if we needed yet more bad news (our 'statistics' are a little grimmer too - could be less than 12 months) he now has one in his spine. He's having oral temozolomide as palliative chemo and has just finished his first cycle yesterday so has been feeling sick and tired and is in bed as I type.

It's strange to be typing these things as is if it's just an everyday thing but we are trying so hard to keep being 'normal' and carry on life despite waking up every morning wondering what the day holds for us.

As we've been together for 8 years and wanted to get married next year and start a family, his tumour in may made us think about everything and after a lot or soul searching we decided to try for a baby. So the one positive (but obviously heart wrenching) thing is that I am almost 4 months pregnant and we hope that all will be ok for David to see our baby in May...

I'm sorry to ramble on randomly ... I just decided to type as I though which is not a great idea. Am on holiday from work and there's only so much housework I can do ...

I hope John's MRI goes well and that you get some positive news when you go for the results.
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