Bitter sweet, or sweet bitter

Less than one minute read time.

FormerMember

2 Dec 2009

Well the Mri results sound ok, Johns tumour is appearing to slowly die, hoever within the pockets, cysts are being replaced.

If its not one thing its another! Steriods started and honestly, i think i need an atom bomb to get him up at a decent hour to take them as now to top it all there is sleepdistubances. Which convieniently happen only at night, and thus he sleeps all day.

Im exhausted, fed up and bloody lonely.

My days are consumed with waiting for him to feel better, and genrally running around being a dogs body.

Not a happy bunny at the moment, how can radiotherapy make someone so much worse, he has no motivation to try and feel better.

Bring on 2010, as this year has been a marathon

FormerMember over 15 years ago

Hey now. Don't go too far down will you. There are people on here to talk to you know. Is there nobody who can help you or give you a change of scene ? Not got to this extreme point with my sister, but we did have some converstations where I said (maybe I was harsh I don't know) it's ultimately up to her to climb out of the despair pit, but I am there and will help in anyway I can, but can't if I don't know how to help (that make sense ?). She did climb out & thankfully is fighting back ready for the next stage (operation). Can you tell him how you feel if you haven't already - maybe there will be tears or whatever, but you can't carry on like this and you need to take care of yourself as well. I kinda put it to my sister in a way that I can only do so much, but if help is offered from friends then she should take up the offer.

Jewels
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FormerMember over 15 years ago

Callea,

I am sorry John is struggling so much with the treatment, I consider myself to be VERY lucky - 33 RT sessions and no fatigue, no sickness or soreness but it would appear that these are very common symptons. Just to prepare you, it can get worse around 6weeks after treatment finishes - thats when the RT "peaks" inside your head! Doesn't last long and as he's already on steroids he may not notice it.

Jewels is right, you can even phone Macmillan (the numbers on this site) its for anyone affected by cancer and that means carers & family and friends. I know its hard it being your husband, not like you can just walk away like you could a friend.......but there needs to be some BALANCE for you both.

Love & Strength

Debs xx
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