After the anxiety of this morning with my partner having a fever again, I am relieved to say that he has started the new chemo: Clofarabine (I think), usually for children with refractory (e.g. relapsed) leukaemia that has become drug resistant. He is also changing pain relief but said he can't tell any difference at the moment, except that the newer one tastes vile!
While I accept that it may not work, I am just…
Hi there
Well, the bad news was that the ALL was back with a vengeance. To cut to the chase, my partner's consultant is going to put him on Clofarabine. 20% chance of it working (max). My partner has had an infection for a couple of days which always seems to come on during the night. He needs to be fever free or they won't start him on the chemo. We all just have to wait today to see if he can start. He is really…
On Tuesday night, my partner had an allergic reaction to the platelet transfusion. His temperature skyrocketed and his oxygen levels plummetted, it was very frightening for him. The staff were terrific and managed to stabilise him. He has been put on morphine and arfron (?) since then as the bone pain has got worse. Felt very scared about this, the docs kept saying it could just be a side effect of the GCFS but today we…
Hope this link works, there are some good ideas in this presentation. I like the idea of fixing a break at a specific time, perhaps just for half an hour everyday. i think that could work. There is a good section…
Watching the local news on Monday night, spotted my partner's consultant on TV, scurrying away from an Inquest. Amused to seeing him smoothing his hair down on camera, never suspected he was image conscious! He is an incredibly clever man but at times my partner says he feels as if the Prof is talking to a batch of cells rather than to a person.
My partner had an afternoon and evening at home, he put up a shelf and…
