Watching the local news on Monday night, spotted my partner's consultant on TV, scurrying away from an Inquest. Amused to seeing him smoothing his hair down on camera, never suspected he was image conscious! He is an incredibly clever man but at times my partner says he feels as if the Prof is talking to a batch of cells rather than to a person.
My partner had an afternoon and evening at home, he put up a shelf and then watched the World Cup in the evening. It's good to see him having some energy, he is a workaholic by nature, the chemo induced fatigue he gets is particularly difficult to cope with, as is 'waiting' in general.
We are in limbo as we need to wait for his body to recover from the Hyper CVAD regime, this can take weeks whereas with his inital treatments his body repaired itself quite speedily. We are hoping he will be in remission long enough for a stemcell transplant to take place. We are crossing everything! I find the uncertainty very stressful at times. It's little things such as will my partner be able to drive my youngest to an event with Cubs next week? We just don't know until the last moment what is going to be happening with treatment.
I had a nice break yesterday morning, a friend who is a follower of Ba'hai, has been running a study group on Spirituality. I attend to give a perspective from a different faith background. It is comforting to know that lots of people are praying for my partner, it makes me feel less isolated. One of the group attending has just found out that her father in law has a tumour in his chest so we talked about chemo and good sources of information e.g. this wonderful website and practical issues such as children visiting - may not be allowed etc. I came away in a really relaxed mood, looking forward to the next time.
I'll stop now, but I wish anybody who chances upon my blog some peace and happiness in their day, have a good one!
kind regards
wornoutcarer
