Community News - Macmillan Online Community

Waiting for results and dealing with the unknown

We know from our members that the waiting and uncertainty around test results and worrying symptoms can be one of the hardest things to deal with. "The waiting really is the worst part" Xxnataliexx "If you read the posts for all the ladies of this forum, we all agree, that the hardest thing is the waiting between tests and results and worrying." MrsBJH The coronavirus pandemic has unfortunately had a big impact on diagnosis and treatment for people affected by cancer. This has made waiting times longer, and unfortunately for some people the anxiety that comes with it is extended too. "I was due to have a liver resection at Addenbrookes but learnt today that they have stopped, for covid, all liver cancer surgery." Elley019 For concerns around cancer and covid-19, you can find Macmillan…

Tom C - Macmillan
Radiotherapy: Tips from the Community

Radiotherapy is part of many people’s experiences with cancer, and lots of members talk about Radiotherapy here in the Online Community. No matter what treatment you’re experiencing, here in the Community there might be someone who really understands. We’ve collated some of our members’ tips and support below. Radiotherapy uses high-energy rays, such as x-rays, to treat cancer. People can have radiotherapy for different reasons, and you can read more about how radiotherapy works, side effects and more on Macmillan’s information and support website . It’s important to remember that the tips below are from Community members’ personal experiences. Everyone’s experience of cancer and radiotherapy can be different. If you have any questions or concerns about radiotherapy, it’s important to seek…

Eliza -Online Community Team
Supporting yourself while supporting someone with incurable cancer (Part 2)

A loved one’s cancer diagnosis can have just as large an impact as a personal diagnosis. Our Cancer Information and Support Advisor, Jenna, is here to talk through some of the complicated emotions you might feel, and ways you can help yourself cope. If you missed the Jenna’s first blog post, you can read it here . In Part 1 of this blog series, I talked through the huge emotional impact coping with the incurable diagnosis of a loved one can have. We discussed the importance of being gentle with yourself and listening to your emotions to help you understand what you need. In Part 2, I hope to share some ways to support yourself through what can be such a difficult time. Just as everyone’s emotional response is individual, what each person needs to help them find their way through is also…

Eliza -Online Community Team
Cancer & me 35 years on - Vol 7 - The recovery

Today in our Community News blog we are very pleased to welcome our guest blogger, Willo, back with the seventh instalment of her blog series called ‘Cancer & me 35 years on’ . In this series, Willo, known on the Community as patsyann85 , tells us about her experience of being diagnosed with Anal cancer in 1986 while living in Zambia. We will be sharing more of Willo’s writing and incredible artwork throughout the next few months in the Community News . If you missed Vol 6 – ‘ The Abdominoperineal Resection with Colostomy ’ you can click here to catch up. Vol 7 - The recovery As you may have seen in the last chapter, my abdominoperineal resection was in November 1987 and coming round from the procedure (as everyone who has had major surgery will know) found tubes feeding in or out of every…

Former Member
The power of peer support

As cliched as it might sound, this year has certainly been unprecedented. COVID-19 has had a huge impact on the cancer Community, affecting diagnosis, treatment, and causing many to have to shield or self-isolate away from loved ones. Yet despite all that 2020 has thrown at us, here on the Community we have seen our members pulling together to support each other through what has been an incredibly difficult year for many. At a time where face-to-face support hasn’t been possible, our Community cancer forum has been there night and day as a safe space for anyone who needed comfort, or just a place to be with others walking a similar road. Here on the team we wanted to thank each and every one of our members for all the amazing support they have provided to one another through one of the toughest…

Former Member
2020 on the Online Community

Picture from , as part of 2020’s Winter Picture Festival Looking back on this year, life might feel very different now than it did a year ago. One thing hasn’t changed: the Online Community is still here for you as a source of support. Here in the Community team, we are so proud of all of our members for sharing their experiences, and offering support to others. We wanted to reflect on everything that the Online Community has achieved in 2020. Our Community Champions won the Vicky Clement-Jones Award Here in the Community team, our volunteers winning the Vicky Clement-Jones Award was an absolute highlight of 2020. The Vicky Clement-Jones Award is for individuals or groups who use their own cancer experiences to improve the lives of other people affected by cancer. We’re sure you’ll agree…

Eliza -Online Community Team
Meet Amy, Part 2: Introducing Stoic Philosophy

In a recent Community News Blog we met our new guest blogger Amy, who struggled with her emotions after being diagnosed with ovarian cancer. Amy has since used this experience to write a blog to help others manage their mental health through cancer and is keen to share some of the resources which helped her. If you missed the first part of the blog, ‘Meet Amy – Finding a way to move towards acceptance and peace’, you can find it by clicking here. Amy told us about a time when she felt that cancer brought a lot of uncomfortable emotions to the surface. She says, “I was tempting to stuff them back down and pretend I was OK. Maybe I did this a little bit on the surface. Sometimes you don’t feel comfortable sharing your darkest thoughts. Maybe you feel a need to protect your loved ones. But I…

Steph - Online Community Team
Spending Christmas without a loved one

At a time of year where we want to rejoice with our loved ones, sadly there are many different reasons why this may not be possible. This may be your first Christmas without a friend or family member, and there may be additional restrictions in place which means this festive period will be very different for you. However you are spending Christmas this year, we hope you can still find some peaceful moments. “This Christmas is going to be a very different one, so don't even try and compare it to others, you need to take care of yourself” AT7 , Reality hits and it hurts blog "I had planned a busy Christmas with a number of changes, but the government have put paid to that! I wonder how many others will struggle more because of this? I have a feeling it could be a long few days with too…

Megan- Online Community Team
A day in the life of...a Cancer Information & Support Advisor

We are pleased to be continuing our ‘A day in the life of…’ series today with Ruth, who works as an Information and support adviser on the Macmillan Support Line. Now that webchat is available directly on the Community site, we wanted to bring you a few of the faces behind the support and help you get to know more about how our teams can support you. For more information on how to use Webchat, please click here to read our recent Community News blog. So here’s what Ruth had to say when we asked her a few questions about her day, over to you Ruth! So firstly, what is a Cancer Information and Support Adviser? A Cancer Information and Support Adviser works directly with people affected by cancer on the Macmillan Support Line – our job is to offer a listening ear and emotional support, as…

Moderator - Macmillan Community
Supporting yourself while supporting someone with incurable cancer (Part 1)

A loved one’s cancer diagnosis can have just as large an impact as a personal diagnosis. Our Cancer Information and Support Advisor, Jenna, is here to talk through some of the complicated emotions you might feel, and ways you can help yourself cope. December is a time where usually we might feel we ‘should’ be feeling positive and festive. I’m conscious that for so many this will be an incredibly difficult time. The shorter days and dark nights, not to mention current restrictions, are likely to have a real impact on our mood and our routines. This can leave many people supporting someone with incurable cancer feeling isolated. I want to reach out with a gentle reminder: although it can feel like it, you don’t have to go through this alone. It is important to look after yourself and remember…

Eliza -Online Community Team
A day in the life of...an Online Community officer

When looking round the Community recently you may have noticed a new ‘chat with us’ button appearing when looking at our ‘Ask an Expert’ section or our ‘ Help pages ’. This is our new Webchat feature and we are really pleased to let you know that the Community team will now be available to live chat with Community users Monday – Friday 9am-5pm to help answer your technical questions. For more information about webchat and how it works, please click here to read our recent blog. We thought, therefore, that it would be great to start a new Community News blog series showing you the faces behind webchat. We have started our ‘A day in the life of...' blog today with Community team member Rachel, who is here to tell you a bit more about what she does day to day to help support those affected by…

Former Member
In Conversation With Macmillan

If you’ve visited the Macmillan Instagram , Facebook or YouTube channels recently, you may have seen this amazing video, 'In Conversation with Macmillan', which you can watch again by clicking on the video below. https://youtu.be/0TP0Hpyiq5Y The video includes personal experiences of living with cancer through lockdown, covers some of the most frequently asked questions about the emotional and physical effects of cancer, and explains how Macmillan can help you through these difficult times. In the opening section, Macmillan host Terri, chats to Mandy, diagnosed with breast cancer in 2011, about her experience of living with cancer and how she’s coped with the pandemic. “At times when I just can’t sleep and I want to reach out and I want to talk to someone, I’d use the Online Community…

Steph - Online Community Team

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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