Community News - Macmillan Online Community

Sleep after Surgery: How does the Community sleep?

It’s recommended that as human beings, we aim to get 8 hours of sleep a night. Some people can manage with only 4 hours, others may need just a bit over 10. It’s always difficult to get the balance right on normal days. However, for those affected by cancer, it seems particularly difficult to try and get some sleep after having a surgery. There is no right or wrong way on how to get your sleep after surgery. Everyone has their own unique way of finding a comfortable way to the land of nod. If you feel you’re struggling and need some tips, The Community and its members are there for you. If your sleep has become problematic as a result of surgery, please feel free to use some of these examples to try and put your mind at ease. You should always contact your GP or medical team first if your…

Syed - Macmillan
The Online Community asks "What can I eat?" - diet and food when you have cancer

Lots of people come to the Community looking for help around taking control of your diet, or worried that you might not be eating the right foods. Cancer or treatments can sometimes cause problems with eating, or may restrict what you can eat. Whatever your situation around food, there is often support to be found through forums in the Community. In this Community News Blog, we will be sharing conversations from across the site and highlighting useful information around your diet when you have cancer. Do I need to make changes to my diet? "Has anyone drastically changed their diet after having cancer because they are worried certain foods or drink gave you cancer? I’m scared to eat and drink a lot of things because I always think, what if that, what if this gave me cancer.…

Steph - Online Community Team
Holly’s Cancer Poems: Cancer and money (Part 4)

Over the course of Holly’s Cancer Poems, we’ve gone through diagnosis, surgery and chemotherapy. Holly was diagnosed with breast cancer in January 2005, and her poems explore her emotions and experiences around cancer at the time. Within today’s blog, Holly talks about her experience of radiotherapy. Holly also talks about the other impacts of cancer such as higher bills and living costs. This is the last instalment of Holly’s cancer poems. If you’ve been enjoying the series, why not let Holly know in the comments below? If you’d like to catch up on Holly’s poems, you can view her previous blogs below: World Poetry Day: Holly’s Cancer Poems (Part 1) Holly’s Cancer Poems: Coping with chemotherapy (Part 2) Holly’s Cancer Poems: Finding support and talking about cancer (Part 3) …

Eliza -Online Community Team
Holly’s Cancer Poems: Finding support and talking about cancer (Part 3)

Holly’s collection of cancer poems were written following her breast cancer diagnosis in January 2005. Her poems talk about her experience of diagnosis, treatment including surgery and treatment, side effects and talking to her sons about cancer. In today’s blog, Holly talks about explaining cancer to children and saying thank you to the people that helped her through. Holly’s collection is called “Holly’s cancer poems…The truth behind my smile.” You can catch up with Holly’s story so far by reading her previous blogs on Community News: World Poetry Day: Holly’s Cancer Poems (Part 1) Holly’s Cancer Poems: Coping with chemotherapy (Part 2) If you’d like to go straight to Holly’s poems, just use the buttons below: Holly's poems: The future Pterodactyl in my tummy Last…

Eliza -Online Community Team
Holly’s Cancer Poems: Coping with chemotherapy (Part 2)

Holly was diagnosed with breast cancer in January 2005. Holly has shared her experience through poems, written at different points of her experience with cancer. If you’ve not read Part 1 where Holly describes her diagnosis, you can read Part 1 on Community News . In today’s blog, we’re sharing 5 poems which talk about Holly’s experience going through chemotherapy. Her poems also talk about coping with side effects from chemotherapy, such as hair loss. Holly also talks about her experiences of talking to family and friends about cancer. This Community News blog is a little bit longer than our other blogs. If you would like to skip straight to Holly’s poems, please use the buttons below: Holly's poems: Cancer terror Under Siege Going bald Sick to the stomach with chemo The…

Eliza -Online Community Team
Naveed's story living with a rare heart cancer

Naveed and his wife, Naveen, talk in their mother tongue, Urdu, about Naveed's diagnosis and some of the stigmas still prominent in their community. This video is part of Macmillan’s mother tongue project, (4 minutes and 19 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll to the end of this blog page. Naveen : “Because treatment was so delayed, it felt like at any time, it could be his last night or last day for us. So that was incredibly hard. I wish I was stronger at…

Megan- Online Community Team
A big thank you to our Community Champions - volunteering on the Online Community

Following on from Macmillan’s ‘Thanks to You’ day at the end of May and National Volunteers week 1 st- 7 th June 2023, we’re taking a moment to appreciate our amazing Online Community Champions. Through this Community News Blog, you can learn more about our Community Champions, volunteering for Macmillan and join us in saying a big thank you to them all. “I have looked around the community a bit and there are certainly some 'Champions'...how kind and empathetic they are - such unselfishness to spend time in responding to other is often rare these days. This website is excellent and has been an enormous help.” Community member Who are the Community Champions? The Community Champions are a dedicated team of volunteers here on the Online Community. They are members…

Steph - Online Community Team
Spring Picture Festival - Community in Bloom

As we’re approaching summer, we wanted to take some time to look back on the Spring Picture Festival this year. We recently asked members to share pictures of what their spring looked like, whether pictures of flowers, art and crafts, pets or more. We’d like to say a big thank you to everyone who shared a picture as part of the Spring Picture Festival. We’d like to add a special shout out to one of our Community Champion volunteers, jane2511 who kick-started the discussion and picture sharing. There are far too many beautiful pictures of flowers, gardens and animals to share everyone’s photographs here in this blog. You can view all the pictures as part of the Spring Picture Festival in the discussion thread in the Express Yourself forum . If you’re new to the Community or if you might…

Eliza -Online Community Team
Songs are therapy too - music and cancer experiences from the Online Community

Music can touch our hearts and uplift our spirits during challenging times. In this blog, we delve into the impact of music on individuals affected by cancer. Through stories and experiences shared by our Community members, we explore how music has become a source of solace, hope, and healing. Music for lifting spirits Our community members in the Living with incurable cancer forum often express the benefits of music, and how it lifts their spirits. One member shared their experience, highlighting a song from “The Greatest Showman” that resonated with them. "Though now blasting out is music from The Greatest Showman, not a normal pick, l have to admit, always, when in a serious mood, as it lifts me up, and the song “This is Me”, sums up so much at times." Community member…

Dylan - Online Community Team
Catching up with the Bladder cancer forum- May 2023

With May being Bladder cancer awareness month, we thought we would catch up with our Bladder cancer form to see what questions have been asked recently, and what experiences have been shared. If you are affected by bladder cancer, this blog is a snapshot of the support you can find by joining the bladder cancer forum. Contents Diagnosis and waiting for treatment Needing reassurance and emotional support Coping with the aftereffects of treatment Practical support Supporting someone with Bladder cancer Diagnosis and waiting for treatment Reading about the lived experiences of others, and what their treatment decisions are can provide lots of reassurance and comfort. The power of peer support can help you to feel less alone when processing a cancer diagnosis. One member…

Megan- Online Community Team
Online Community downtime: Wednesday 31st May 2023- 7.30am to 9am

There is some planned maintenance taking place on Macmillan’s website on Wednesday 31st May, from 7.30am-9am. So that this essential maintenance can take place, the Online Community will experience some downtime. This means that members will not be able to log in, or join the Online Community, between 7.30am - 9am on Wednesday 31st May 2023. We know how important the Community is as a source of support for our members, so we always do our best to ensure the site is not unavailable for any longer than necessary. Please know that while the site is down, although you will not be able to create an account, log into the site or post, you will still be able to view the Community and read posts and discussions for support. We understand that this may impact members who rely on the Online Community…

Su - Macmillan
Myeloma and a stem cell transplant: Mary’s story

A cancer diagnosis can be a shock. Thinking about treatment may feel overwhelming. If you’re feeling nervous or worried, you’re not alone. Mary was diagnosed with myeloma in 2020, which is a type of blood cancer. This can also be known as bone marrow cancer. Mary has shared her experience of diagnosis, having a stem cell transplant and chemotherapy through her video. Mary’s story talks about cancer experiences many people might go through, even if you or your loved one has a different diagnosis. Mary shares what receiving her diagnosis was like. Mary also talks about hair loss and adjusting to being back at home after a hospital stay. She also shares her experience of finding support around her mental wellbeing. If you’ve been diagnosed with myeloma, there’s lots of support available on the…

Eliza -Online Community Team