Community News - Macmillan Online Community

Mary’s experience of Living with Cancer and coronavirus

During the Coronavirus pandemic many people turned to the Online Community for support. Although the Online Community has always provided a space to access peer support, it really did mean so much to our members as they were still able to access support when most face to face services had closed. “Being able to access these forums has meant so much especially during the pandemic.” - Winkers60 , “ Thank you for sharing your experiences Gemmary, they are so insightful and a real benefit to anyone going through similar. I love your perseverance in navigating and overcoming the challenges, keep going Gemmary, keep climbing upwards!” - Ourgirlinthenorth Members turn to one another to offer support by sharing their experiences in our Community groups. This is what Mary did at the start of March…

Megan- Online Community Team
What does the Online Community mean to you?

Last month, shared a wonderful Community News blog highlighting the kindness shown across the Community. “No matter what has brought you to the site, no matter how cancer has affected your life, our members will support you through. The kindness of strangers soon becomes the kindness of friends.” – Rachel - Macmillan, Community News Blog, June 2021 It was lovely to hear from Community members in response to Rachel’s blog. We heard that you really enjoyed the chance to read some of the kind and supportive messages from across the whole site. If you haven’t yet read Rachel’s blog ‘Our members are here for you’, you can catch up by clicking here. Although we’re sorry that circumstances have brought each of you to the Community, we’re so proud that the site provides so much support. We’d…

Steph - Online Community Team
Cancer & me 35 years on - Surgery at St. Mary's

Today we are back with the 13th volume of our longest running Community News Blog series ‘Cancer & me 35 years on’. Willo was diagnosed with Anal cancer in 1986 while living in Zambia. In this blog series Willo has been sharing her experience of living through and beyond cancer. Alongside sharing everything she has been through, Willo has also been sharing the amazing artwork she created during this time in her life. So far, Willo has covered her experience of moving back to England for treatment, her Abdominoperineal Resection , going back to art school p ost-surgery and the amazing friends and family that helped her through. In today's blog, Willo talks about a very important, and often very difficult time in anyone’s cancer experience, waiting for results. We are back with Willo today…

Former Member
How Reflexology helped me - Charlie's story part II

In today’s Community News Blog, we’re hearing from the lovely Charlie. Charlie began to share some of her experiences with us back in February, where she kindly put together some videos to show the Community how they can use simple reflexology techniques to help them. Charlie is a Clinical Reflexologist and was diagnosed with breast cancer in January this year. She’s been using some reflexology techniques to help her cope with the side effects of treatment. Today she’s sharing some tips to help with heart burn, sleep and nausea. We’d like to say a big thank you to Charlie for sharing more about her journey, and for taking the time to put together these videos especially for us here on our Community cancer forums . Since my last blog the it feels as though an awful lot has happened to me and…

Ellen - Macmillan
Being bodies: vaginal dryness

Vaginal dryness affects lots of people, for many different reasons. Some cancer treatments can cause vaginal dryness. Vaginal dryness can also be a symptom of the menopause that some people may experience. Your body and how you feel about sex can also be affected by how you are doing emotionally. For some people, it can feel difficult to seek the right help. This could be because you feel embarrassed or ashamed, or not listened to. It’s important to know that you’re not alone. In today’s Community News blog, we’re talking all about vaginal dryness, and what might help. “It is so frustrating when something so delicate and intimate can affect us all.” Community member The vagina usually produces some natural fluid. If your vagina is producing less of this fluid, some types of sex might…

Eliza -Online Community Team
Talking about grief

Photo by David Today we are back with our 5th instalment of our Bereavement series. The aim of this series is to try to shine a light on important issues facing those who have lost a loved one to cancer, and remind everyone that the Community is a safe space where we welcome any conversations about grief and bereavement. But why is it important to talk about grief and how we are coping after the death of a loved one? And do we all need to be more open about what we go through when we are grieving? Today we will explore this further and look at the different ways of accessing support. Why is it hard to talk? Talking about grief can be really difficult, it can be hard for both those who are grieving, and those who are supporting them. For those who are grieving, you may worry that…

Former Member
Sarcoma Awareness

If someone approached you on the street and asked if you knew about Sarcoma, chances are you may be part of the three in four people that would be confused by the question. To clarify, according to a recent YouGov Poll posted on the Sarcoma UK website , 75% of people don’t know or are not sure what sarcoma is. Of course, that could be due to how truly rare this cancer type is. So, let’s try and reduce the 75% figure during Sarcoma Awareness Month (1 st July – 31 st July). What do you know about Sarcoma? Let’s find out together as we take a deeper dive into the different types of sarcoma and what the early symptoms may be. What is a sarcoma? According to the University Hospital Plymouth , sarcomas are malignant tumours derived from mesenchymal cells in various parts of the body. These include…

Syed - Macmillan
Let's talk about HPV

After last week’s Cervical screening awareness blog ‘ Overcoming smear fear with the Online Community ’, we wanted to talk about the human papilloma viruses (more commonly known as HPV). HPV can be detected in cervical and anal screenings and today we’re highlighting some of the most recently asked questions about here on the Community. If you need more information, please visit the Macmillan website here or get in touch with the Macmillan Support Line by calling 0808 808 00 00, emailing or using live webchat during the hours of 8am-8pm. When you have been for a cervical or anal screening test, understanding the test results can sometimes be confusing because of the language used, or it not being clear what is going to happen next. Members turn to each other on the Community to support one…

Megan- Online Community Team
Celebrating Pride month

June marks the international celebration of Pride month. In the words of Stonewall , a charity dedicated to supporting LGBT+ people in the UK, “pride is about communities coming together in celebration, protest, unity and solidarity.” June is a month where we celebrate the LGBT+ communities around the world. Here on the Online Community, we wanted to shine a light on the support that is available for LGBT+ people living with cancer and their families. We also wanted to talk more today about the history of Pride and why it is so important. It’s important to acknowledge that the celebration of Pride in June each year doesn’t mean that this is the only time we can focus on supporting LGBT+ people affected by cancer and celebrating the LGBT+ community. Here at Macmillan, we are dedicated to supporting…

Former Member
Here's what you need to know - Community Improvements

On Tuesday 29 th June, we’ll be releasing the first of our improvements into the Community. You can read more below about how this will affect the site on Tuesday afternoon, and what changes you’ll see once the release has been done. On May 5 th , we attempted to go live with these changes. Unfortunately, we encountered some unforeseen issues which meant we weren’t able to go live at that time. Since then, we’ve been working really hard behind the scenes to get this right. We hope you feel the benefit from the first of our improvements soon, and we'd love to hear any feedback you have for us about these changes. Key information The release will happen on Tuesday 29 th June. The Community will be ‘down’ between 1pm – 4.30pm. This means you won’t be able to view, or log in to the site…

Ellen - Macmillan
“It was a surreal experience” - Lesley’s story

After her breast cancer diagnosis six months ago, there was a lot Lesley wasn’t expecting about her own experiences of cancer treatment and recovery. She also wasn’t expecting how much strength she would find in herself, and unexpected places. Lesley talks about her experience with diagnosis, cancer care, breast cancer surgery, radiotherapy, follow-up and recovery in today’s guest blog. Six months ago, I was told the news I had breast cancer... the wind physically left my lungs. I was alone when I got the news. This was for two reasons. Firstly, I thought it was yet another benign pesky cyst and it was a minor irritation and two - it was in the middle of a pandemic. The lovely consultant took my hand, looked me in my eyes and said, “I’ll make sure you’re ok.” I could’ve hugged him, but I…

Eliza -Online Community Team
Prostate Cancer Information

We know from listening to our members that the amount of information to take in when you first get a cancer diagnosis can be overwhelming. It can affect everyone within a family as well as friends, alongside the patient. In today’s Community News Blog, we’re looking to help by providing clear and concise information on one type of cancer – prostate cancer. “Think everyone here can associate with the overwhelming emotions that come with a cancer diagnosis in a family ” court, Bowel cancer forum. Go to discussion . We wanted to start with a video that explains what prostate cancer is and the main types, risk factors, stages and common treatments available. www.youtube.com/watch Prostate cancer is the most common form of cancer in men in the UK, around 80% of 80-year-old men have prostate…

Tom C - Online Community team

Awake and up all night?

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