Community News - Macmillan Online Community

Looking after you - coping with a recent bereavement

There is no right or wrong way to feel if you have just experienced a recent loss. Everyone is different, and everyone’s relationship with the person who has passed away is unique, so it’s natural that each person will need different support depending on how they feel. The most important thing to remember is that you are not alone. The Community, and Macmillan, are here to support you. As part of this support, we wanted to put together some information about looking after yourself after a recent bereavement. In the days or weeks after the loss In these early days after a bereavement being kind and gentle with yourself is so important. You may be experiencing shock, numbness, anger, extreme sadness or a whole range of different emotions. There is no wrong or right way to feel, but there…

Former Member
Cancer and the menopause - Hot Flushes

We often see members coming to the Community, asking questions and looking for support with menopausal symptoms. Some cancer treatments can cause an early or temporary menopause, or similar side effects. You might be trying to manage menopausal symptoms alongside cancer, or whilst supporting someone else who is living with cancer. In this new mini-series of blogs we’ll be sharing links and tips for managing symptoms and raise awareness around the menopause and related symptoms. One of the most common menopause and hormone-related symptoms, are hot flushes. They can be fairly mild, or severe enough to cause great discomfort and sleep disruption. If you’re currently struggling with hot flushes, I hope the icy landscape images at least give the illusion of cooling you down whilst you read…

Steph - Online Community Team
Cancer treatment - Living with a PICC line

Do you have questions about living with a PICC line ? The Online Community is a great place to hear from others about their experiences. You can also ask clinical questions to our Cancer Information Nurse Specialists . In this blog, we’re highlighting conversations from the Online Community about PICC lines, and how you can take part. Getting a PICC line fitted For many members, the idea of having a PICC line fitted can feel worrying at first. In the Breast cancer forum , some members shared that the procedure itself was much easier than they expected. “the insertion of the PICC was absolutely painless, in fact I did not even know the procedure had been done.” “I was terrified of having it inserted but it didn't hurt me either.” Another member described how the process felt straightforward…

Dylan - Online Community Team
Macmillan Community Breakfast with Chef & Brewer

We are delighted to share with you all a lovely offer from Chef & Brewer pubs this December. They are offering a free breakfast for you and a plus one – as we know turning up to things on your own can be daunting. There are 10 places per every Chef & Brewer site. This is a wonderful chance to connect with others, share stories, and enjoy a relaxed festive morning together. Chef & Brewer are part of the Greene King group, you can read more about the partnership with Macmillan here. The sign up is really simple: Visit the Chef and Brewer website and enter your postcode to find your local pub and select ‘Book a Table’ Choose Friday 5 December at 10:30am for your reservation (this is the only day and time the offer is available) Set the number of Adults to ‘1’ or ‘2’ (if bringing…

Megan- Online Community Team
Lights, Camera, Action – the Online Community spotlighted in Macmillan Emmerdale TV campaign

At the end of March, we shared a teaser blog about filming a new TV spotlight message for the Online Community. We want to reach more people living with and affected by cancer so we can be there for everyone who needs us. Today, we’re delighted to be able to tell you more about this important project and how members of the Community team have been involved. Throughout April, May and June 2026 Macmillan partnered with ITV's Emmerdale , the much-loved British ‘soap opera’ to help raise awareness of the realities of a cancer diagnosis and the vital support that Macmillan can offer. Steph starred in an advert to appear after Emmerdale to spotlight the support available from the Online Community. Emmerdale’s prostate cancer story Macmillan was proud to be partnering with much-loved soap…

Steph - Online Community Team
“I did not know the stranger looking back at me from the mirror.” -Renita’s hair loss story

Last month, Community member Renita ( RMD ), shared her story in this blog , of being diagnosed with invasive multifocal ductal and lobular breast cancer. She wrote about the challenges of treatment and how the Macmillan Online Community gave her support, hope and comfort when she needed it most. In this blog, Renita shares her experience of losing her hair during treatment, hoping to help others going through the same thing feel less alone. I thought being diagnosed with multifocal invasive ductal and lobular breast cancer was traumatic. Don't get me wrong, it was, very much so, as was the mastectomy that followed and the various side effects of chemotherapy. Each one seemingly worse than the last. Despite having worn the cold cap during my chemotherapy sessions, enduring the freezing…

Megan- Online Community Team
Coffee Morning with Macmillan's Online Community

September marks Coffee Morning month! While Macmillan’s official Coffee Morning date is 25 of September, you can take part anytime. It’s a chance to come together, share a cuppa and start talking. Here at the O nline C ommunity, we know how important those conversations can be. By sharing experience s, advice and support, members help one another feel listened to and less alone. In this blog, we’ll hear from members about the connections they’ve made and support they’ve received. We’ll show you how you can join conversation s in our forums and find your nearest Coffee Morning. Grab a cuppa and let’s celebrate coming together. Feeling less alone Many members of our community have found comfort and support through our forums. For some it may be the first time they’ve felt able to open up…

Lizzie - Online Community Team
Hair care, hair loss and styling tips from the Community

Are you having treatment and worried about losing your hair? Or do you have questions about styling hair changes? This blog includes some recent experiences and suggestions from Community members across our different groups. There are some great support resources and information to help you cope with hair loss, and we will include some of these towards the end of the blog. We know that hearing the experiences of others can be invaluable when learning how to manage side effects like hair loss, hair styling and maintenance, so we hope you will find the following helpful. Hair loss Coming to the forums to ask questions about hair loss can help you manage and process any hair loss side effects of treatment: “After chemotherapy, when the hair starts growing back, has anyone had experience…

Megan- Online Community Team
Diagnostic testing for endometrial cancer- Jane’s story

Jane was treated for endometrial cancer in 2022 and became a Community Champion in 2023. She volunteers in the Womb (uterus) cancer forum and across the Online Community. Members often turn to Macmillan for support during the diagnostic process so Jane is sharing her personal experience undergoing diagnostic testing for endometrial cancer, which may provide some reassurance if you have concerning symptoms. Dealing with symptoms My first symptom was a heavy vaginal bleeding where I passed palm-sized clots. This caused some cramping and lightheadedness. I also felt some lower back pain. After general checks at A&E, I was seen by a gynaecologist who referred me for further testing, and I was put on the two-week cancer referral pathway. I was unhelpfully told that only ‘one in ten ladies…

Megan- Online Community Team
When Positivity Hurts: Insights from the Online Community

Maintaining a positive outlook can be incredibly helpful when coping with a cancer diagnosis. Although positivity has a role to play in staying emotionally healthy, it isn’t always healthy when it becomes the only focus. A number of Online Community members have shared how painful and isolating it can feel if a loved one repeats certain positive phrases or overly optimistic attitudes whilst ignoring the more authentic negative feelings a person might be struggling with. When a focus on positivity dismisses someone’s true feelings, it can become “toxic.” We published our first blog on toxic positivity in 2023. It resonated deeply with the Community, inspiring us to write a follow-up blog last year. Now, we’re back with part three. This edition highlights members' comments from Toxic Positivity…

Dylan - Online Community Team
Take a moment

Today’s blog is exploring how you can take a moment for you, in a way that is accessible and safe for your situation. We know that alongside the physical impacts of cancer, there’s also the emotional effects to cope with and you may be wondering what support is available to help you. There’s a lot of discussions from members of the Community sharing the different strategies and techniques. Complementary therapies and relaxation techniques can have a positive impact to your emotional and physical wellbeing. Included in this blog are personal experiences shared by members of the Online Community. Why is it important to take a moment Living with cancer, or being there to support someone, can add a lot of anxiety and stress. This could be from dealing with uncertainty, attending lots of appointments…

Megan- Online Community Team
“Am I the only one awake?” Cancer and sleeplessness

Have you been up in the early hours of the morning because of your cancer diagnosis? If so, you are not alone. Our Community is available 24 hours a day, making it possible to post or reply in the forums no matter what time you are awake. We often have members writing about their struggles with sleep. In this blog, we want to feature some of those discussions and highlight insightful experiences and wisdom shared. “At times sleep is a mystery on the cancer journey” Community member, Breast cancer forum “Hi folks, this is my first post and it’s the middle of the night because I can't sleep.” Community member, New to the community forum Timeless support: A 7-year conversation Seven years ago, a member of the breast cancer forum found herself…

Dylan - Online Community Team