Newly diagnosed with cancer: Finding support in the Online Community

2 minute read time.
Newly diagnosed with cancer: Finding support in the Online Community

Finding out you have cancer can be overwhelming and it’s normal to experience a range of emotions. During this time, connecting with others who understand what you're going through can offer much-needed comfort and support. If you have just been diagnosed, or you’re supporting a loved one who has, the Online Community is here for you.

New to the Community

The shock of hearing the words “You have cancer” can leave you feeling uncertain about what to do next or how to even express what you're going through. Some members have found that just saying “hi” and acknowledging their feelings helps ease the initial isolation.

"Not really sure what else to say, I'm obviously still in shock but just wanted to say hi."
Community member - Womb cancer forum

After receiving a cancer diagnosis, it's perfectly normal to feel detached, confused, or even numb. There is no right or wrong way to feel.

"Hi. Completely new here. I feel very numb and can't get it off my mind. Is this a normal way to feel?"
Community member - New to the Community forum

Decision-making is another overwhelming aspect of a new diagnosis. Many Community members write about dealing with difficult choices early on. In the Community, you can connect with others who’ve faced similar decisions and learn from their experiences.

"Im new here and need to make a decision. I'm terrified of waking up looking horrific, the thought of a mastectomy terrifies me as it feels so final. I'm hoping to make a decision by the end of the week but I'm struggling."
Community member - Breast cancer forum

Sometimes, people react in ways they didn’t expect. You might even question your own response to the diagnosis.

"I am newly diagnosed with male breast cancer. I am also waiting to see if I have prostate cancer too. All my friends are freaked out by this but I have totally taken it in my stride. I feel unaffected by it to the point that I think that I am weird for my lack of reaction. Has anyone else experienced this?"
Community member - Cancer chat forum

The Online Community isn’t just for those who are living with a diagnosis. It’s a space for caregivers, family members, and friends too. Carers often find it difficult to know how to support their loved ones while managing their own emotions.

"My husband is newly diagnosed…. I am so anxious, please can anyone offer me reassurance.”
Community member - Prostate cancer forum

Learning from the Community and Macmillan

There’s so much to learn from those who have walked a similar path. Earlier this year, we asked members to reflect on the day they were diagnosed and share what advice they would give themselves if they could go back in time. These insights were compiled into a blog, which you can read by clicking here.

If you’ve recently been diagnosed with cancer, there are many resources available through Macmillan to help you understand your diagnosis and the next steps. Whether it’s information about treatments or emotional support, we’re here for you every step of the way. You can find out more on the link below.

Just been diagnosed? | Macmillan Cancer Support

Join the Conversation

If you’d like to share your experience or have a question, please leave a comment below or start a new discussion in one of our forums.

Anonymous
  • Hi  

    I'm sorry to hear about your husband's prostate cancer diagnosis. Receiving a diagnosis like that can be a big shock and a lot to have to process. I’m glad you have found our Online Community and I hope that you find it to be a safe space of support and comfort. 

    Hearing that you need to be “the strong one” can feel overwhelming, especially when you're trying to process everything yourself. It's okay to not feel strong all the time, and it's important to give yourself permission to feel whatever you need to. Often people will be overly positive to the point where it is very unhelpful or even "toxic". We have published two blogs about "toxic positivity". If you'd like, you can read the first one by clicking here.

    You may benefit from joining our Family & friends forum and the Carers only forum, as they are for people who are supporting a loved one living with cancer. Once you have joined these forums you'll be able to post in one or more of them. You will likely find other members who may be going through a similar experience to yourself.

    If you’d like to start a new discussion thread in any of our forums, you will just need to become a member of the forum you wish to post in first. Simply click the black ‘Click to join’ banner at the bottom of the page, and then you can add a new post by clicking the ‘+new’ or ‘+’ button near the group title.

    There’s some help with using the site available here if you get stuck, or message us back and we’ll support you further.

    Please remember you can also contact our Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat. They are here to listen and help you find the right support. They’re here to chat and offer emotional support, and they can also help with clinical questions you may have. 

    You can also reach our teams on the Support Line here on the Online Community in our "Ask an Expert" section.

    I hope that once the scan results come in, you’ll have more information to work with, and the doctors will be able to create a clear plan for your husband. 

    Take care,
    Dylan

  • Hi  

    Thank you so much for leaving a comment here and sharing some of what you're going through.  I can appreciate how that shift from nurse to patient must be unsettling.

    I can understand how you might feel embarrassed or selfish for being afraid but please know that there is no right or wrong way to be feeling and your feelings are completely valid. Starting treatment is often one of the most daunting steps. Its important to remember that you don’t have to go through this alone. The online community and Macmillan is here for you.

    If you'd like to introduce yourself to the Community, the best place to post would be in our New to the Community forum. In our Community forums, you’ll find people who understand what you are going through.

    Wishing you comfort and strength as you navigate this difficult time. Feel free to reach out whenever you need to.

    Dylan