OK folks, not sure where I got to lasttime but we went to Guy's for the results today. It wasn't brain mets, but something caused the stroke, possibly at surgery, but he is already getting more movement back. On the less than positive note the CT scan showed mets that were too many to count in his abdomen. There are 3 main ones of 4cm, 2.5cm and .8cm and a shotgun style scattering of mets accross his whole abdo currently too small to measure. This seems incredibly fast growth to me as nothing was visible on 5th August when he was scanned before surgery and just seems to confirm the incredibly aggressive nature of sarcomatoid and rhabdoid kidney caner.
Bizarrely he is happy!!! He starts first round of sutent tomorrow and he is happy cos he is getting some treatment. We start the marathon 15 hour drive to france at 5am Saturday morning.
I feel like I have been hit in the face with a kipper. We had our 9 year old in with the onc the whole time and she took it all on the chin. At one point she said "well I just didn't get any of that. Please can you explain it properly".
This onc was absolutely great but husband doesn't get it at all. hey ho if the notes on the box are to be believed we are in a for a fun holiday!
More news soon from the rainy shores of Lac de Biscarosse
