Boosmum's kidney cancer blog - God I could scream!!!

1 minute read time.

OK first time blogging so I'm not sure what I am doing.

God I could scream just about sums it up.  I am fed up with his cancer! 

I am worried and scared.

Came home from work this evening and he calmly informs me that he can't move his left foot properly.  He sat on the sofa and sort of pulled his toes towards him, the right ones moved a good couple of inches, but the left ones moved maybe a cm.  He then informs me that his arm feels heavy and his left hand feels a bit funny.  He has had some back/shoulder pain over recent days.

He refuses to let me call the dr and when I said it could be serious we had an argument.  He knows it could be a minor stroke, and still won't call the dr even when we talked about brain mets.  He says I am being melodramatic and that he won't tell me anything next time.  He has now gone for a walk to the shop to buy cat food.

Am frustrated and angry.  To top it all stand in GP won't write the referral for second opinion to Tim Eisen until we have spoken to current oncologist.  As we have no way of contacting the oncologist for an actual conversation and no appointment until the end of October and emails have been ignored for a week it doesn't seem likely we will get anywhere.  We have no macmillian nurse or anyone whatsoever to contact.  Very very P O'd today!!!

Anonymous
  • FormerMember
    FormerMember

    Oh dear Boss Mom what a difficult

    dilemma you are facing. You cant do right for doing wrong, but you must weigh

    up the consequences, as you say these

    symptoms could be a stroke coming on,

    or it could be his medication, or a

    number of things. If i were you i would

    take the chance of getting a b------king

    and seek his doctors opinion,he may

    be scared of being sent in hospital which

    is understandable, but what happens if

    this serious, you will end up blaming your

    self. As for not having a Macmillan nurse

    you can find out about this at your GPs

    or the hospital, it,s not fair on you having no support at this time, although you know

    you will always have support here.

    Let us know how you get on and try not

    to get to worked up in yourself, easy said

    than done but its no good you making

    yourself ill.

    Sending you a big cuddle and  lots of

    love. Lucylee. xxxx

  • FormerMember
    FormerMember

    Its been said before you carers hav it so hard! Just to say I agree with everything Lucy says. You know he must be concerned about the symptoms or he wouldnt have mentioned them. I would definitely seek a medical opinion, you are not going to have rest or peace of mind if the situation continues as it is.. Do hope you get some support for you both. Love and blessings, Karen xox

  • FormerMember
    FormerMember

    Dear Boosmum's

    I agree with everyone else so far not that that's much help to you just now.

    We are at position just now where we are waiting on feedback from original appt when we were give terminal diagnosis - 5 weeks ago! - apparently no treatment available for hubby.

    Yesterday, I got so fed up waiting for support / feedback that I contacted Macmillan's directly.  You don't have to be referred to them via GP or consultant.   Click on the tab at top of this page which says "How we can help" and  in the box under "Find your local information and support centre", enter you post code and the details for nearest Macmillan centre will come up on the screen.  Give them a call,  believe me, I'm glad I did.  They will pull out all the stops to help you as first and foremost they are there to help the patient and carers.  Tell them what is going on and they will advise, if not, act on it for you.

    Thinking of you both.

    Hugs

    Liz

    xx