Well he went to the dr's in the end. Not his GP but a locum. Says the pain/non movement of foot is probably muscular but has ordered a bone scan anyway. He also prescribed the painkillers my husband had a massive allergic reaction to in hospital!!!
Husband is grumpy and miserable, but I think it is just being in limbo that is doing it really.
His KC is a particulary rare type of RCC with sarcomatoid and rhabdoid features. They are still debating whether the clot on the lung is a clot or a tumour so we have no treatment yet.
On a more positive note it is our sons 18th on Sunday and he will be home from college for the weekend. Eventually after he stops off at several parties tonight anyway! I'm just glad that we are all here to see his 18th which back on the 29th June we weren't too sure about!
Sorry for being grumpy yesterday but I am really knackered!
Still off to the caravan in France for half term and can't wait!! Ok so it won't be the summer we missed, but it will be away, he will be with friends all the time and the kids can have a bit of fun.
Anyway have to sign off now and clean the car before hitting the ice rink tomorrow.
Love to all.
