Awaiting biopsy after MRI for advanced endometrial carcinoma

Hi Loulou

I was stage 3. Following MRI, I was told I had a prominent but not enlarged lymph node, so got me to do a PET scan. This didn’t show up anything in the lymph node, but did highlight a few cells on one of my ovaries, so was diagnosed stage 3A.

Had hysterectomy beginning of Dec 24, and this was followed up with 25 sessions of radio with 2 lots of Cisplatin. I coped with this reasonably well. I then had 4 lots of Carboplatin/paclitaxel, which I found harder but got through it. Finished this at end of May. Had CT scan 3 months later, and no evidence of disease. Just had second 3 monthly check up and all still fine.

The key to getting through this, however hard it is, is not to think too far ahead, just focus on what you need to do now.  It does feel easier once you know what the treatment plan is, and you get to feel a bit more in control again. There are quite a few of us here that have had advanced cancer, so do ask for help, even if it is to scream.  Hope you don’t have to wait too long for your results of CT scan.

HI XX

Stage 3 grade 2 type 1 ..no lymph node spread , abdominal wash showed no sign of disease.. had a total hysterectomy received on 30th July  2024 .. 

Given 23 rounds of external abdominal radiotherapy and 2 internal  Bracktherapy sessons from September through to  october 24 .. 

November 2024 in began my Chemotherapy treatment ..4 rounds of Carboplatin/paclitaxel 

On 28th January 2026 I will be 12 months post end of  chemotherapy.. and all treatment! 

I have recieved no further Ct or MRI scans ..different health authorities seems to follow different procedures 

I have had two post end of treatment face to face following up with my proffessor..

Last one was yesterday.. He happy with my progress next appointment will be in 6mths time CNS lead ..

When first diagnosed I was in shock and  I was so detached from my diagnose I didn't deal with it mentally at the time ..   it's only now I am processing everything I have gone through .. amd i will be honest My mental heath at the moment is not good ..

Use your CNS ring them if you have issue ..think of questions to ask at appointments ask for a print out of your Treatment plan...

Stay of Google 

Use this group 

It will seem like a never ending journey BUT you will get thete ..take it in stages ...

Try and keep positive... 

8f there is anything you would like to ask pleaes do not hesitate..

Hi Loulou26

Welcome to the Womb group.

I am sorry to hear that you have had a diagnosis of endometrial cancer and that it has been diagnosed at a more advanced stage. I can understand that it all feels overwhelming and devastating at the moment. 

It is normal after a diagnosis for the MRI/CT scan to be done and these along with the lymph node biopsy will give a provisional stage and grade. This is what they use to come up with the most effective treatment. 

It sounds like they believe the cancer to be locally advanced and they are just getting a clearer picture of where exactly the cancer is. I know that it is hard to wait for the results but hopefully they will not take too long. 

For most ladies where it is medically possible the first line of treatment tends to be a hysterectomy. With a more advanced cancer there is normally some follow up treatment. 

I think with any diagnosis it can help to break things down into smaller steps and not to think to far ahead. Otherwise it can all feel overwhelming. Focus on one thing at a time and on what you know rather than what you don't yet know for sure. Endometrial cancer is normally a very treatable cancer and there are many ladies on here who have had locally advanced cancer and have successfully undergone treatment for it. 

The first step is to wait for those results. They will be the deciding factor on what your treatment plan will look like. If you feel like it would help to talk things through then I can recommend giving the Support Line a call. They are there from 8am-8pm daily. 

My own treatment was surgery, then chemo and then radiotherapy. My surgery took place 4 weeks after my first symptom. Once those results come back I would expect things to move quite quickly for you. I would hope that by this time next week your results will go the the MDT meeting and they will be in touch with you to arrange next steps. In the meantime, we are here when you need us.

Jane

Thank you so much for replying , I really appreciate this and the information on your experience. Yes I hope I don’t wait too long for results although I’m not looking forward to all of this . It’s positive to hear from you and your outcome gives me hope!. 

Thank you for replying and sharing your experience , it’s helped me feel less on my own and that there is hope. Just waiting for the results so I know the stage appreciate your help !!. 

Thank you , this has really helped , your journey sounds like the one I am about to begin. It’s very daunting but it has really helped hearing from you guys as I don’t feel as alone now !. 

It can feel very daunting and overwhelming to begin with but I personally felt better once I had my treatment plan and knew what would happen and when