Phone call on Monday - endometrial cancer diagnosis

I'm so sorry that you've received this diagnosis and haven't been supported throughout this difficult time.  Once they have the scan results and have the MST meeting, they will advise you of the stage/grade of the cancer as this will impact any possible treatment pathway. 

In the meantime try calling three macmillan helpline who can support you through this.  Wishing you all the best

Thank you 

Hello sweetheart, 

I am so sorry to hear of your news and the fact you have been through hell n back. We are all hear for you, and we have your back. As a pain relief Sugg asking for Penthrox also known as the green whistle bit like gas n air it is also a muscle relaxant. It's mostly used in A&E but it does work.

I'm very much like you, we're my weight is big issue when it comes surgery they told me in a matter of fact. I'm desperately trying to loose weight but l don't meet criteria for weight loss jab through my GP. But l have known people to have had hip and knee replacement done through spinal block were you are fully awake but will be numb from waist down. 

Yes it is very very scary, that's normal feeling you are experiencing. You are not alone going through this journey and l am giving a massive virtual hug, the nurses on here are superstars they are very empathetic talk you through every step, then there's the support line they are congruent, listen to you and reasure you

Please don't think you are alone going through this, we are all hear for you. 

I must apologise for my essay.

Wishing you all the best sweetheart 

Hi HappyDays

Welcome to the Womb group.

I am sorry to hear that you have had a diagnosis of womb cancer and that you have been through so much to get it. 

Once a diagnosis has been made then the CT and/or MRI is the normal next step. They are being done to stage the cancer and see exactly where it is in the body. This helps determine the best possible treatment for you. Once all the results have come back then it is normal for them to be put before the Multi disciplinary team at your hospital. They will discuss everything and come up with your treatment plan. For most hospitals the MDT meets once a week and for mine most results/phone calls would be done the same afternoon.

A hysterectomy is the normal first line treatment offered to ladies where it is medically possible. Mine was done 4 weeks after my first symptoms. I know it is scary to be told that surgery is likely however although it is a massive thing for us, for the surgeons it is a very routine operation that they do several times a days. Mine was done via keyhole, I had little pain, in hospital one night and home the following day. I recovered well. 

I am also asthmatic and was worried about the surgery however I had my mind put at rest by the surgeon. I also met the anaesthetist before the op. Before your surgery they will do full pre op checks on you and they will make sure you are safe for the procedure- from memory BMI, bloods, ECG, blood pressure, covid test. 

After surgery I was taken back to a room and had one dose of pain killers late evening. I was given ibuprofen and paracetamol to take at home if needed. I was also given 30 days of anti coagulant injections to do at home. There was no other medication.

After surgery there will be post op results that will confirm your stage and grade and it is these that are used to confirm whether any further treatment is recommended. Mine came through around 3 1/2 weeks post surgery. 

The link below has some information that you might find helpful. 

Womb cancer booklet | Macmillan Cancer Support

Hope this helps a bit. If there is anything else you want to ask about please do so. We do also have the Macmillan Support Line available from 8am-8pm daily if you feel like you need to chat things through with someone. 

Jane

Nothing to add to the advice from others. Just sending you a virtual hug.

I just want to say thank you for adding your story as it has helped me a bit. I have just requested a GP appointment via e consult form following a single pink spot in my knickers on Saturday. Lower abdominal cramping that I have been ignoring for ages and some other discharge I just accepted as normal! Its the first time I have been 55 so I don’t know! Post menopausal, years since last period. Was on HRT 3 years until breast cancer diagnosis a year ago today. Taking tamoxifen for 10 years. 
I was going to wait for another spotting incident and just get on with life. But actually thank god for google as it told me to see GP even if just happens once. Plus my other symptoms I now know are possibly connected. So now I wait for the GP to actually offer me an appointment. They are very slow. 
its hard to find symptoms posts from people later diagnosed with cancer. 
Good luck with everything xx

Hopefully things will quicken up for you, and you don’t have to wait too long to get checked.

Hi Ginger Jayne

Welcome to the forum. 

Am sorry that you have had some spotting and cramping. You are doing the right thing in getting checked- even if it is only once and a tiny amount. 

I would expect your GP to do an urgent referral to have an ultrasound appointment. Mine was at an NHS diagnostic centre close to my hospital. I had the appointment within a week. After the scan something was picked up and I was called the following day by a nurse who was arranging for me to come in the following day for a biopsy. 

The ultrasound is abdominal and transvaginal and they will look for anything that looks concerning but also measure the thickness of your endometrium. Sometimes tamoxifen can be associated with this. 

In my area it is now actually possible to self refer for post menopausal bleeding. You would fill out a form online and then be offered an appointment within the 2ww if needed. If this is not the case where you are then I would suggest calling your GP surgery if you have not had a response to you e consult by the end of the week. 

Womb cancer | Macmillan Cancer Support

The above link has some info about symptoms. 

My only symptom was a heavy bleed but I know many on here have had the slightest of spotting. Main thing is anything post menopausal needs checking. 

Jane

Just had a call from the doctors. No face to face appointment just straight 2ww referral to gynaecology. Now wondering if I tell my husband because he didn’t cope well with my breast cancer diagnosis last year. Thinking of waiting until there’s anything to tell. 

Hopefully you won’t have to wait long, I was lucky they were in contact with me within 24 hours to arrange appt.