Phone call on Monday - endometrial cancer diagnosis

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Hello, I’m new here, and to be honest can’t really believe I’m here Cry I went to my GP back in May after having some abnormal bleeding and consistent pain when making love. I’m 53, never carried a pregnancy to full term, though I am mum to 3 amazing young people (16, 14 & 12) who me and my husband adopted. My heart is breaking for them!!  I had a twin ectopic back in 2004 (while in West Africa!) and three rounds of IVF between 2006-2008. I’ve not had a period since January 2000. Been through menopause. 


So my GP referred me, and due to summer holidays I went to see Obs and gyne on 2nd August. It was a cereal appointment where I didn’t feel that taken seriously. My mum had same cancer at similar agePensivearound 25 years ago (she’s still with us!). She explained that they have strict 4mm target and if womb lining was over that she would do biopsy.  While scanning she said she couldn’t see the end/topPensivef my uterus and lining was over the 4mm so she would do biopsy. Oh my goodness I was not prepared for the pain or trauma that caused me, it took me right back to my ectopic surgery, where I had had Pensive have it under an epidural (awake throughout!!) because they had no resuscitation equipment available PensivePensive I was not offered any pain relief before or after the procedure. I ended up sitting in the car park for about an hour and half before I could drive. I was on my own! 

on leaving the room the consultant asked me if I was a worrier - I mean what a studio question, of course I was worried or I wouldn’t have gone to see my GP! I said I wasn’t a person to worry but waFrowning2 concerned. She said “well I’m not concerned about you, you’re not on my list of people to be worried about. I’m not expecting to see you again” Frowning2Frowning2

fast forward to Monday 8th September, I get a phone call out of the blue at 11am from a consultant I’ve not met to tell me I HAVE CANCEr SobSobSobSob

I’m off tomorrow for MRI and CAT scans, and got to wait till Thursday next week when they will discuss my case. She said I have a full hysterectomy sometime two weeks after 18th September. 

At this point I know nothing else. I have a constant pain in my lower stomach/reproductive area, and top of my left leg just inside leg - that’s been there about 6 months. I’m also finding it very painful to walk in left leg, pain in right arm pit on and off, again has been for 6-8 months - no idea if any of this is related and some of it I thought I was just making up in my head. No one knows about it because they haven’t ask and I didn’t say. I’m terrified of dieing on the table. I’m asthmatic and obese son all BMI charts. 

I feel so unsupported and been given no one to talk to other than the consultant secretary - is that normal? She doesn’t seem to have any medical knowledge or really much help. 

What can I expect?
What should I be asking? You don’t know what you don’t know! 

what medication is likely to follow surgery if any? 

thanks for reading to the end 

x

  • I'm so sorry that you've received this diagnosis and haven't been supported throughout this difficult time.  Once they have the scan results and have the MST meeting, they will advise you of the stage/grade of the cancer as this will impact any possible treatment pathway. 

    In the meantime try calling three macmillan helpline who can support you through this.  Wishing you all the best

  • Hello sweetheart, 

    I am so sorry to hear of your news and the fact you have been through hell n back. We are all hear for you, and we have your back. As a pain relief Sugg asking for Penthrox also known as the green whistle bit like gas n air it is also a muscle relaxant. It's mostly used in A&E but it does work.

    I'm very much like you, we're my weight is big issue when it comes surgery they told me in a matter of fact. I'm desperately trying to loose weight but l don't meet criteria for weight loss jab through my GP. But l have known people to have had hip and knee replacement done through spinal block were you are fully awake but will be numb from waist down. 

    Yes it is very very scary, that's normal feeling you are experiencing. You are not alone going through this journey and l am giving a massive virtual hug, the nurses on here are superstars they are very empathetic talk you through every step, then there's the support line they are congruent, listen to you and reasure you

    Please don't think you are alone going through this, we are all hear for you. 

    I must apologise for my essay.

    Wishing you all the best sweetheart