Phone call on Monday - endometrial cancer diagnosis

Thank you so much for taking the time to reply.  I can't have Penthrox, broke my ankle and couple of years ago and was given it by paramedics, never again it was aughful for me :-( but next time, hopefully there won't be one (!) I will know to ask in advance.  Had scan's yesterday, but consultants secrutary can't tell me when the MST meeting will take place that my case will be considered at, wont be this week (today) as she had not filled the form in on Tuesday (FFS!!! - grrrr), so I'm assuming it will be next week.  Honestly i just want to be treated like a person not a number on their list.  I can't believe they have told me this over the phone, even a virtual call would have been better, at least I could have seen someone's face, and then just left me hanging.  I called in at the Mcmillian centre at the hospital yesterday, waiting for someone to call me back.  Everything is waiting for everyone else to do things right now.  My head is all over the place today and can't be motivated to do any of the things I really need/should be doing.  Currently sat in bed writing this. 

I hope you get sorted for where you are on your journey and are getting some good care and support.

Oh gosh Ginger Jayne, that is so tough. You have people here, but I'm sure your husband would want to know and be standing with you however hard that it. I keep thinking about our wedding vouse it sure makes the 'in sickness and health' feel very real. Sending you a massive hug and positive thoughts.

Thank you for taking the time to reply with good factual information Jane. I wish the team at my hospital would just take a little more time to do the same. I am feeling massive FOMO right now and feel like I've got cancer, it's a total shock to my system, but I should just shut up and get on.  Someone said to me yesterday it's the most common type of ladies cancer. Nothing special about it. What I mean really where they hoping to make me feel better with that??? There is a whole load of trauma around all of this for me due to my history and experiences of hosptials, infertility, lossing babies and having to have life saving surgery (ectopic) while in a developing country - believe me its nothing like the NHS, which I'm very grateful for!! - but on the other side of the coin I'm already feeling trauma from the care I've not received, the comments that have been made and things I've witnessed of other patients not being empathetically supported and cared for.  it was hidous yesterday in the scan department hearing an grown lady in her 60's crying while they attempted to insert and canlay in her and her tell them her son had died unexpectidly in the last 2 weeks.  At no point did they stop and ask her if she would like a moment or could they bring in the person she had arrived with and was sat in the waiting area.  Just terrible care, well not care!!! I worked in the NHS for 10 years and sadley my last role within the SHA was reporting of doctors who had not done things corrently - slightly tarnished the halow most people think doctors wear for me. So lots and lots of trauma for me in this whole thing.  I am also neurodivergent.

Ooh sweetheart, 

I know, again I'm going to give you a massive hug. Yes it is very stressful, and it seems human side of treatment gone out of the window

I know at beginning it took 2 months to organise to have Tvs scan it feels service is overwhelmed with patients care has gone and yes we are just a number l kept on refusing I'm not Havin scan unless l have prior medication. It was a tennis match between GP who kept refusing to prescribe my medication to consult kept sayin ooh it's down to your GP, but I'm stubborn I'm person still at end of day

So on day of Tvs scan still couldn't perform the scan l couldn't lie back enough due to my sleep apnea just saw my cervix rest was shadowing. I used green whistle, ooh it taste awful reminded of me of having my teeth out in 70's

Sadly consult has removed me from 2 week pathway had bloods to see if I'm still menopausing or post. I swear it's easier extracting teeth than getting results constantly ringin secretary to no avail. 

I strongly feel personally that my constant heavy bleeding l mean heavy had to wear 2 large incontinence pads sit on black bath towels. My bathroom looked very much like murder scene my weight had alot to do with it hence sleep apnea since l have lost 2 stone within 2 months l have stopped the bleeding but l still don't know whether l have got a carcinoma or not

So, yes you will be emotionally all over the place, going through this journey is very frightening, and you will feel alone no one will know what you are going through and constant battle you have to face to get answers. Yes we will start to feel like we are on a conveyor belt. It shouldn't feel. Like that. 

Don't keep your emotions locked up speak out Macmillian also gave telephone support buddies as well as support line. Not forgetting this amazing womb grp. We have Yr back. 

Again so so sorry about my lengthy essay

Have a big hug from me. The stage you are at at the moment was the really worst part of my journey.  I actually thought that everyone was going down a similar path, but I was lurching from far left of the path to far right, and occasionally if briefly met the path everyone else was on. The testing was horrendous, waiting for the results was horrendous, and a couple of unhelpful comments from nurses at that stage did not help. My friends actually told me not to call the nurses as they could see how upset I got afterwards.

Once I was diagnosed, things seemed more straightforward, and back to being on similar path to others, and since then everyone I have had dealings with at hospital have been great.

Really hoping things improve for you like they did for me.

Thank you for sharing your journey with me and all the other amazing people here!  I’m so sorry you are being past from one post to another, that’s not nice or right. I really hope you get some answers soon and they agree to appropriately support you so the necessary examinations can happen. S nding you postive vibes