Reoccurring womb cancer

  • 23 replies
  • 77 subscribers
  • 1925 views

 I was diagnosed with uterine cancer October 2022 and had a radical hysterectomy with bilateral salpingo-oophorectomy. I had 2 tumours stage 1a & 1b but was told it was a curative op with a low chance of reoccurrence.  About 6 weeks ago I had some vaginal bleeding which has been intermittent, I have had pain that is becoming more persistent just inside my left hip. 

I contacted my oncology team and had a MRI scan last Wednesday, on Monday they called to say that the results had come back and I was to come to the hospital today. So as you can guess, I'm expecting the worst news today. I've been silently stalking this group for people's accounts of symptoms and treatment journeys. Today I'm joining in, so worst case or not, my story will be here for the women who are yet to come, and are searching for information will see. 

Update, I have a 3cm tumour at the top of my vault, had some biopsies yesterday but bled profusely and Dr not sure if I will need biopsies under general. Also referred for PET-CT to see if it's spread outside my pelvis and review results in 2 weeks.

  • So sorry to hear that .mine was similar. Its really hard and waiting for results  takes ages.i have had 3 tutors in the vagina had various  treatments  .I do think it's good to talk to a nurse specialist  who can talk things through  with you.the best of luck

  • Thanks April, I am having a full body CT/PET scan on Monday morning. Then a telephone appointment for results on Wednesday. Been told that I will definitely be having 25 external radiotherapy sessions, anything else is dependent in Mondays scan so fingers crossed. You're so right, waiting for results is the worst part. I haven't been assigned a CNS yet or spoken to the cancer specialist hospital. Only told that they will be taking over my treatment and next steps 

  • Hi, just read your journey so far and though how thoughtful it was that you are posting it for people who may go through this in the future. 

    I hope I don’t start the journey at all but won’t know until next week when I get to hear my histology results. 

    Wishing you well with your treatment going forward.