Waiting for hysteroscopy

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Hi everyone new here. 
I’m not sure what to write really. Had PMB two weeks ago and a TVS last week which showed thickened and irregular endometrium and a growth possibly a polyp but didn’t know for sure and couldn’t rule out anything more concerning. Had a biopsy done at the same time and waiting on results but they didn’t find it easy to get tissue. I don’t know whether that’s a good or bad thing or irrelevant.  Waiting for a hysteroscopy now which I should get in the next two weeks. 
The doctor said it was unlikely to be anything serious but I don’t know if that is because they can’t tell from the scan or it’s true. Everything I have read - which I know is not a good thing to do - points to the irregularity being a red flag. 
I’m trying not to worry until I’ve got something to worry about and hanging on to the doctor saying she thought it was probably ok but wondering if other people have had this and then it has turned out not to be ok!

  • No one can guess what this is so  you just have to wait until you have the results of the hysteroscopy. I assume you were OK with having the biopsy - with the pain issues? If not, you can usually have hysteroscopy with pain relief, such as local anaesthetic and/or gas & air, which may help. Hysteroscopy takes a bit longer than the standard biopsy, so perhaps you might discuss this with your doctor in advance, unless of course you've already done that.

    Meanwhile try not to worry about what 'might be' as it's a waste of energy. I know it's hard but everyone is different so it's impossible to second guess what might be wrong and the lining isn't always a factor.

    You could have a benign polyp or fibroid but you are doing the right thing in getting checked.

    Good wishes for the hysteroscopy.

  • Just to let you know I asked to have the hysteroscopy with a general anaesthetic and I was given it this way. You only have to ask in good time.  Every hospital is different and I’m in Cumbria and I went to Lancaster Royal Infirmary because the short list was lower than Furness General Hospital in Barrow in Furness.  Good luck with the procedure x

  • Thank you. 
    The biopsy was very painful and took 4 attempts but I managed. 
    im a bit scared about the hysteroscopy but mainly it’s trying to second guess what the medics truly think. 
    on the one hand everything is likely to be ok. On the other they are insisting on all the tests and that makes me anxious. Just generally overthinking and googling which I know is unhelpful but it’s hard not to imagine the worst. When my sister had breast cancer, everyone said it was bad. Nobody ever said it’s probably or likely ok and so we were always prepared for bad news. I’m just confused as to whether everything genuinely looks ok and if so why I’m having biopsies and hysteroscopy if chances are there is nothing to worry about. 
    in summary I’m overthinking and catastrophising but can’t help it. 

  • I am glad you coped well with the biopsy but hysteroscopy can be more painful and if it took 4 attempts for the biopsy it might be worth considering pain relief. Also, if you have the local anaesthetic, apparently (according to my nurse!) it helps open the cervix a bit, which makes the procedure go a bit better.

    As for the mental side of things, we all overthink these things but try to take each day as it comes until you actually know what the situation is.

    I always have local anaesthetic and gas & air with my biopsies as it really helps, but you follow your instincts. You will have the information within the next few weeks and then will know which direction you need to take.

  • It’s only been a couple of days but I’m obsessing over when the hysteroscopy appointment will come through. The scan information has gone across to my gp who has also referred me - the letter says for possible malignancy. It also has my age wrong - said I’m 63 and the details of the bleeding wrong. I feel really cross but no point ringing surgery to complain/put record straight as will just sit in a queue for 40 mins.  I nearly didn’t get the TVS because the doctor and PMB teams didn’t speak to each other, booked two appointments and then also cancelled both. I’m hoping the gynaecology oncology team will just action the hysteroscopy but wondering how long I should give it before I ring. The not knowing is the worst bit and it’s hard to have faith when they are already making mistakes all over the place. I’ve got a holiday booked in four weeks and am scared I won’t be able to go or I won’t know anything by then. I don’t know how everyone copes with the waiting. 

  • Mine turned out to be bleeding from uterine fibroids. Though I didn't have any abnormality in lining, I did have a polyp which was also bleeding a bit, so they removed it.

  • If it was me, and given there have already been mistakes re appointments, I would give them a call tomorrow. Everyone on here knows how hard it is waiting for tests, results, etc, so they should understand.

  • Hi, you can always set the record straight on the details later when you have the next appointment, so I think you are right in leaving that for now.

    We all suffer with the waiting game, but try to keep busy, it does help! I take each day as it comes now and kind of try to live in the moment. It's not easy but does get a bit easier with practice! Just say to yourself: today is for living and not worrying...

  • I know it is so so hard not to worry. We all need answers and reassurances from experts as this is so so scarey. Our brains are wired to make us think the worst 

    I'm sane as you, I'm new too. I'm waiting to have tvs, they are concerned about my constant very heavy bleeding which they say at my age 53 l should be post menopausal. I did have fibroid removed. But I'm still bleeding Dr did say womb cancer is rare but let's do tick box and let's rule it out let's get this scan done.

    It's so nice to share this journey on forum like this. I'm sending you a virtual hug something l think we all so desperately need 

  • Thank you everyone for the support. I had a call from the gynae navigator today. Not a clinician but very supportive. I was told they are waiting for the biopsy to decide which tests to do next which makes sense. But I have  also been referred to the vulval clinic which I didn’t know. So that’s another appointment to wait for but the good news is they seem to want to be thorough. I feel like I am regaining some perspective

    The news will come and when it comes good or bad we will deal with it. The waiting is horrid but there are truly worse things. Chin up everyone going through similar. And big hugs xx