Hello. I need something hopeful

I’m just tagging the friend I made on here as we were diagnosed and had our ops at about the sane time so she can reply! Lolabo it’s here! 

Thank you Jane. This is a wonderful group.  At the moment I’m trying to take my mind off it all and get some work done so that I an take time when I need to rest after the surgery

Hi Jacki,

So sorry about your husband, what an awful time you have had. Please read my profile about my journey. I felt exactly the same as you and still have my moments (usually when feeling very low after chemo) but can honestly say, I am hopeful and feeling positive and I hope my story helps x

Hi Hop5. Ive read your story and see that you’ve been through a lot.  Your mention of the CA125 brought back my husband’s journey and how we lived to see a drop in that number.  Unfortunately his never did get back to anywhere near normal.  This is all beginning to feel like a very bad dream. So hard to process. Just wish I could get a guarantee that I will be ok

Hi Jax2u,

I felt I had to reply to you, although I had my hysterectomy 6 years ago, at age 72 and things have probably changed a lot in that time. I had keyhole surgery, which is marvellous. I also lost my husband to bowel cancer 2 years ago and can equate with having no-one to discuss things with. 

My husband got through throat cancer 16 years ago, and one thing I have learnt is that it all depends where the cancer is, what they can do with it, and how quickly it was spotted. I was fortunate in that I had a bleed and went straight to the doctor, so it was caught early. I had a hysterectomy and no further treatment. I found the operation far less troublesome than having my tonsils out at 21 years old! I walked in the mornings, but got my feet up in the afternoons. I found I started to ache, so knew I needed to rest up. We went away in our motorhome at 3 weeks, and it did me good to get out. I was in hospital for 2 days simply because my bladder went to sleep!! 

Keep up your dog walking. That will help keep you fit before the operation.

Hi Jax,

Please try not to worry. I can't imagine how this all feels to you with having been through a cancer journey with your husband. The women on here are so lovely and have really supported me when I have been very down and I know they will do the same for you too. Hopefully your CT and MRI will come through soon and you will get a treatment plan. Everyone on here will be on hand to support you. Take care xxx

Hi Jacki

I am also post menopausal and found out I had womb cancer after I had a CT scan that showed my womb lining was 14 mm thicki had a hysterectomy on 14 November last year, I had keyhole surgery, so have little scarring, just three small marks!  I was in hospital one night as I was late in the day going down to surgery.  I must say I had very little pain afterwards, and I just had to be careful not to do too much, and not lift anything heavy and rest as much as you can, your body will let you know when you need the rest.

When I came out of hospital they gave me a weekly chart of do’s and dont’s,, that was up to 12 weeks after the operation, likE when it was ok to drive, do housework etc.  Just try to follow that to help you recover.

I’m so sorry that you lost your husband, it must be so hard for you, but everyone on the forum will help you get through everything.

Good luck with your operation when you have it and keep us informed of your progress.

Ange 

Hi NannyAnny.  How lovely that you took the time to send me such a lovely email.  I turned 70 in November but like you I’m not your average 70 year old :).   I am hoping and praying mine is early stage.  There has been more of a delay for me getting to this stage.  My GP insisted she thought it was because they had tried to fit a doughnut ring thing to address a bladder leak. then she said it was blood in my urine so sent me for a cystoscopy.  My bladder was “pristine” according to the urology consultant and he sent me for a kidney and pelvic CT scan in December just to rule out anything in the kidneys.  They were perfect too but it was noted on the scan that the uterine lining was thicker than it should be. That’s when my GP finally referred me to gynaecology and I got the biopsy done in Mid January.  I do hope all of this waiting hasn’t meant a lot of progression. it would be wonderful if I only needed the hysterectomy 

Thank you Ange.  I’m so glad I found this forum. I was feeling very alone with all this………

Hi  thank you tagging me.  I remember feeling just the same as you Jax. Ours was during strict covid restrictions and I felt so alone going to all my appointments and my operation on my own.  This group has helped me so much, especially with MarmiteFan and madesp support, who I found through this group and it will help you too.  Only people that have been through this diagnosis know how scared you feel.  Honestly though, 2 years on and I am feeling completely back to normal again.  As others have said don’t try to do too much too soon, listen to your body and then gradually build up your strength.  You will be up and about again in no time at all.  We are all here for you if you need advice, help or just someone to talk too x