Hi there
I’m 33 and I’ve been diagnosed with womb cancer stage 1b over the summer. There is a long history a lynch cancer in my family so I will be tested for that well.
i met with a consultant on Friday and because of the high probability of lynch syndrome I’ve decided to go for full hysterectomy. I’m scared. I don’t have children either. Fertility is not really an option as there is mutations in the gene. So I will never be able to bear children.
I’m a bit overwhelmed and find it difficult to be ok with all this.
i haven’t told my family yet. I don’t how to deal with all this.
Do you have any advice on how to cope ?
xx
Hello Aud40
Welcome to the Online Community. I am sorry to hear that you have had a diagnosis of womb cancer over the summer. I am sorry that there is also a high probability of lynch syndrome.
Having a diagnosis of cancer is always a worrying time and I hope that you will find the Online Community as supportive as I have found myself. If you click on my name- my profile will come up- but I was diagnosed and treated for womb cancer in 2022.
It is understandable to feel overwhelmed and scared. With the added worry of the Lynch testing and also not having children it must be hard to come to terms with it all. If you feel like talking it through with someone would help, then I recommend you give the Support Line a call. The number is below. They are lovely on there and will understand how you are feeling at the moment.
I can understand not having told your family yet- I sort of felt the same until I knew for sure what I was facing. You will know the right time but I would advise that if they are supportive and you are close to them- speak to them as soon as you can and they will hopefully be a good support to you. It's not only emotional support but it's all the practical things like going to the hospital, recovering from the surgery etc.
My hysterectomy was in April 2022 and was straightforward. I recovered well from it and had very little pain. I was home the next morning.
I found to cope the best thing was to find out the information I needed from a reliable source. There is a lot of information on the internet that is not accurate or outdated. I will pop a couple of links below with some information.
Womb cancer booklet | Macmillan Cancer Support
Lynch syndrome (LS) | Macmillan Cancer Support
I also found it helped to go with the flow a bit. It is normal to feel a bit all over the place, sometimes shock, sometimes anger, sometimes upset. Reach out to people that are close to you and reach out to others on here. They have been through it and will understand. Hopefully you will be given a CNS (Cancer nurse specialist) soon- if you do not already have one and I found that mine was a great support.
I hope this helps a bit- but if there is anything you need- then please do ask
Jane
