Hello all,
I'm 42 and mum to 2 boys. Back in March I had a very short period and the following month it just didn't stop, it wasn't heavy but I spotted for a month and had lots of bloating and pain. I paid for a private ultrasound inside and out that found a thickening of the womb - 18mm and what they thought was a poly approx 14mm. I went back to the consultant early May who said she couldn't perform the hysteroscopy and polyp removal due to my high BMI. Thankfully my GP referred me to the NHS who performed the hysteroscopy on the 12th of July.
Hysteroscopy day came, 'oh, that's not a polyp' they took 2 biopsies and 4 biopsies all around my womb and said worse case scenario it will be pre-cancer cells and they may need to fit a coil.
I get the call to come in this Tuesday the 26th. First time I've met my consultant and she said it's showing cancer, type 1. She books me in for an MRI and CT scan but doesn't expect me to have these for a couple of weeks so will see me around the 16th, as it happens my nurse got me a cancellation that same night for the MRI with contrast and my CT is Sunday. I will see my consultant again Tuesday the 2nd.
She said the next time I see her she will be able to tell me the results of the scans, if it is anywhere else and where it is in the womb, and she will book my in for a hysterectomy approx 2 weeks later.
This is all happening so fast, my head is spinning. Has it happened this quick for anyone else, from what I am reading its usually a bit of a wait? I am so scared for my results Tuesday, I just don't want to leave my boys to grow up without me, I don't know what to do with myself, I am devastated.
I have no idea at all what to expect now.
Alex x
Alex don’t be afraid to risk appearing a “nuisance” - I phoned so much that my CNS team all knew who I was! But they said they liked it like that and would far rather someone phoned a lot than held back and worried. The MRI should tell them most if not all of what they need to know - the CT may just be for back up or some possible extra info.
It’s like I want to know but don’t want to know, horrible feeling!
I am wondering why some ladies get an MRI and others get CT for Womb cancer?
Hi Sassy, I wondered the same when I was first diagnosed, as I was told I’d need an MRI and a chest x Ray, but then I came on here and saw that some women were having CTs! My own conclusion, and I’ve no idea if it’s right, is that it’s down to individual hospital policy and even possibly budgets. I think MRIs cost more than CTs. But that’s just my own thought! I’ve not heard before of someone being given both an MRI and a CT but can only assume that they’re being ultra efficient and that maybe there’s a particular reason, perhaps unrelated to the cancer, that means having both may be helpful for some women,
Hi Sassy
I have wondered the same. I only had a CT and Xray. Recently had a 2nd CT when I was admitted to hospital with an infection. I was going to ask for an MRI at the end of my Chemo and Brachy in Oct, will let you know if its declined. Think MarmiteFan is probably right about budget constraints.
All the best with everything, keep us posted.
Hugs Robin x
MRI and CT scans show up slightly different things so ideally we would have both. I only had a MRI - that was 7 years ago (so long before covid) and even then there was a long wait. However after surgery my oncologist did insist on a CT scan to complete the staging and establish a baseline. before RT. I believe there is a lack of resources, both equipment and staff. Too often the importance of radiologists, pathologists etc is forgotten in the press.
XXXX
Anne
(Class of 2015!)
Robin, I think it’s the norm to get a scan at the end of treatment when you’ve had chemo so I don’t think there should be an issue.
Hi SassyL53, I had both CT and MRI scans. My op was done at a University teaching hospital so don't know if that makes a difference. I know there was pretty well a whole audience viewing my op from the adjacent theatre - I was told that by a surgeon who dropped by the following day, she said the surgeon did a lovely job.
For information both MRIs and CT scans view internal body structures. However, a CT scan is faster and can provide pictures of tissues, organs, and skeletal structure.
An MRI is highly adept at capturing images that help doctors determine if there are abnormal tissues within the body. MRIs are more detailed in their images.
Hugs, Barb xx
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