Feeling sad but cracking on..Saying hello!

  • 2 replies
  • 101 subscribers
  • 224 views

Hi everyone Slight smile

I’ve been aware of the forum for months but haven’t said hello yet. It is quite useful reading peoples stories and seeing what everyone is going through…

I was diagnosed a year ago with womb cancer 1A .. & I’m now having hormone therapy with the IUD. My biopsy (owch!!!!!) showed an improvement in December…and I will have surgery in May for another biopsy and for a camera to have a look around. I’m not nervous about this surgery but I am about a hysterectomy as that really feels like alot to go through physically and emotionally.

I think I’m just feeling abit bummed out and sad at the moment!! I don't let it get to me often. But things have changed, I’m 34 and I don’t feel like I have the energy I used to have at all. I also have PCOS which I feel has brought me this diagnosis. Despite always trying so hard with fitness.

Me&my partner got married in October and I really hope we can have a child. We’ve both changed our lifestyles and slowed down alot.. but sometimes I feel like the rest of the world is still going on and we don’t fit in there so much anymore. Tonight we were supposed to go to a premiere of a friend’s film… I can't lie I’m much happier under the duvet! But I still resent the fact that I feel unwell.

I’ve recently left my job as I was finding it was adding so much extra stress and they were really unsupportive.(they put ALOT of pressure on for HR meetings and OH)-then said i had exhausted sick pay... when I left I didn’t even get a card! After seven years, to say goodbye and good luck with treatment..

oh well. ! 

i look forward to reading more of your stories!

thank you for reading, from fed up lady in Manchester x

  • hi

    Welcome to the Womb group.

    I am glad that you have found it helpful to look through previous posts- many people do. 

    I am sorry to hear that you have been having such a rough time and have had a diagnosis of endometrial cancer. 

    Having a diagnosis of cancer is bound to feel overwhelming at times and feeling fed up seems to be a normal thing to go through. You are going along, living your life and then wham- something comes along that affects everything and how you look at life. Actually having hormonal treatment can have an impact on how you are feeling physically and mentally plus having the repeat biopsies is not pleasant. 

    It sounds like the mirena is starting to have an effect. There are other ladies on here who have been treated successfully with the mirena. I do understand that at your age, potential loss of fertility is a concern. 

    I am sorry to hear that your work place was not as supportive as you needed and I can understand the need to slow things down and focus on what is important at the moment. 

    My own cancer was in 2022 and I had a hysterectomy and that was followed with chemotherapy and radiotherapy. Mine was a stage 1 cancer. I can understand you feeling nervous about having the surgery but I did recover quickly from the hysterectomy. Mine was done via keyhole and I was in hospital for 1 night only. I had little pain. Although for us the surgery is a big thing, from the consultant's point of view, it is a very routine surgery for them and they do many of them. I was able to walk around the hospital within a couple of hours of mine and was able to do most things when I got home- just avoided lifting anything too heavy. 

    Congratulations on getting married. 

    We do have the Support Line available from 8am-8pm daily if you feel that you would like to talk to someone. 

    There is a Maggie's centre in Manchester and many people find them helpful. I will pop a link in case it is something you would like to look into. 

    Maggie's, Manchester | Maggie's

    This link is to some general info. 

    MAC11656 Understanding womb cancer

    I hope this helps a bit. We are here when you need us.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi, as Jane had said, hormone treatment can work for many women and we all have different experiences. My hormone/coil treatment worked completely after a full year. It's worth sticking with it when the results come back clear - and I wish you all the luck in the world. I don't have fertility issues as I am a lot older than you but needed hormone treatment as the only safe option for me at the time. I don't regret it and am free of cancer but take every day as it comes. If the next tests come back clear like last time,  I will be on annual monitoring. Chin up and hang in there..