Newly diagnosed grade 3 endometrial cancer

Thank you  it does help hearing other people's experiences  x

No I wasn’t. All the best as you try and think this through. Have you been put in contact with your CNS team? Mine have been really helpful for both info chats and support. I’ve been in touch with mine a lot and have met two in person.

Been given CNS contact details & am going to get in touch after the weekend when I've tried to organise my thoughts a little. I've written down my questions/ queries ready. 

Bless you and I’ll be thinking of you as you try to let it all settle. I imagine they may be different in different hospitals, but my CNS are three main nurses, with 2 Macmillan volunteers who help with messages when the nurses are busy as they also meet with patients at consultant appointments if needed, and also attend MDT meetings. Mine have been super from the start, not just answering questions and offering support, but also chasing results, chasing appointments and asking the consultants questions for me. They’ve made the whole journey so far a lot easier.

My CNS  has just telephoned , had a good talk to her with some practical advice to help me with my journey & decision making. Phew such a lot to think about  Thank you for your support x

Hi and welcome to our spot in the Online Community. Here you'll find a lovely supportive group of ladies who know what you're going through and you're not alone.

I was only offered adjuvant treatment following the histology results after my hysterectomy. I know lymph nodes were sampled as well as LVSI but I just signed a consent form TBH not really sure what was going on. I see Madesp has offered a helpful reply.

I do hope someone here can offer you advice, don't worry we won't tell you what to, as you say were' all different.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Hi toilet I don't think they can take ALL lymph nodes as they play an important functional part in our bodies...maybe you mean they would TEST ALL lymph nodes removed?

No checked, would take ALL PELVIC lymph nodes. Not  any other bodily lymph nodes though xx

I wonder how many pelvic lymph nodes we have - does anyone know?  I have tried googling to find out and find lots of diagrams showing them, but when I count them there are different numbers in each diagram!!  I had 18 removed during my hysterectomy and haven’t had any ill effects so far… My surgeon said he was sure I would be fine, so I’m hoping…

Pippa x

Does that mean   that they have already tested/sampled your pelvic nodes and confirmed to you that they are already cancerous?