Womb cancer diagnosed

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Hi HI my name is Mo I’m 63 was feeling well apart from sciatica and leg pain in bed at night had a croaky throat and sore throats occasionally but this was put down to my inhalers so I did have an X-ray on my hips and right knee but this was put down to being degenerative nothing serious, Dr also did blood test and I was low in B12, so had a course of tablets for this. Not long after this I noticed pink discharge was told to take urine sample in which came back with small amount of blood and repeat in 2 weeks Ingot straight onto the email to surgery and said don’t u think a lady of my age post menopausal and  bleeding should have further investigations, I had a phone call the next day for appt in the surgery Inwas examined by the prescribing nurse manager who was brilliant she examined me and said she could see pink discharge, discharge and soreness which I could feel.  The next step was referral to Gynaecologist before this appt happened I had a trans Vaginal examination in Ultrasound they told me my womb was thicker than they would like, also a blood test the Dr did was showing cancer markers were up.  When I had appt with gynaecologist the Dr did a hyteroscooy which she took biopsies ouch very painful think you should be given pain relief for this, the Dr then sat down with me and said it was cancer she could feel and see growths said it was quite bad but they could treat it, I said is that end of life TLC oh no she said we can treat it.  I was on my own my husband was in the reception waiting for me so he was brought to me as they were sorting out pre op for another biopsy as I would of bled too much.  As you can imagine this was devastating for all my family and friends I had my pre op assessment a few days later that went ok I had a letter for an appt for this over a month later I was so angry what was going to happen in between so I found out the number for the secretary of the consultant and my specialist nurse she managed to squeeze me into a clinic with the consultant he said they would be having an MDT meeting on the Monday and having a look at my biopsy results he more or less told me what the previous Dr had said so the nurse rang me on the Monday to say it was womb cancer they wanted to do the other biopsy to get more info and they booked me in for a CT scan and MRI I went for the CT scan the specialist nurse rang me with the results about a week later it was bad news they don’t like giving the info over the phone but I was prepared I had my husband and son his partner and their 2 dogs with me it had spread from the womb nodules in the pelvis under breast bone and multiple nodules in both my lungs we were all devastated thought this was the end so they weren’t giving me the MRI scan or the biopsy op as they weren’t operating just chemo and maybe hormone treatment it’s not curable just treatable as they call it palliative care the whole family are so devastated my husband is beside himself, I’ve been for my oncology appt and they have given me a fulL MOT assessment lungs kidneys all Ok no fluid in stomach I’d just had a chest infection over Xmas so was relieved my chest was ok my first appt is 14 th Jan think I had a cancellation I’m having 2 drugs in a drip every 3 weeks over 18; weeks so the fight is on I  a strong women so hoping I will be ok with it as if not there is only hormone treatment I’m sure I’ll be fine they told me all the effects it may have I’m sure you will all know who’s had this treatment. You won’t believe this but when I came back from the oncology I started with a urine infection had antibiotics off the Dr yesterday and this has started to improve so hope that will be it now until my chemo sorry for this long story but wanted to put it out there I’ve got a good support network so I  lucky there and I’m very positive so got my boxing gloves on ready to smash it in the face 

kind regards to I all 

Mo 

  • Hi Mo. I was a bit concerned in case I got addicted to morphine but my Oncologist, GP and CNS assured me if you're taking it for pain relief that won't happen. I haven't felt drowsy when taking during the day but I have slept better since taking a 5ml spoonful before bed. Haven't notice the same level of constipation but if I don't got for 2 day I take  laxidol.

    Hugs, Barb xx


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  • Hi Mrs BHJ

    Thanks for that think I’ll take another Laxido  with been loose last night but not much Bowel movement just the laxido coming out I didn’t take it last night but my daughter in  Law said to take it today to keep everything moving if things don’t get better I’ll call Dr to talk about morphine.

    Kind Regards and big big hugs for tomorrow 

    Mo xxx

    • Hi Barbara
    • just to update you I had another urine infection after I had terrible diarrhoea for a few days on antibiotics again had results back Monday at last non-stinging when I wee and no tummy pain my hair did start to come out on the 14th day my hairdresser came and shaved my hair had my night caps and bandanas ready went for atf tea next day for my Grandsons 18th all the family together it was amazing a day I’ll treasure forever I haven’t had the peripheral neuropathy but problems been through urine infection constipation then diarrhoea feeling sickly and food tasting different only fancying certain foods and drinks couldn’t even stand drinking  water but managed it with bit of  lime cordial in I have yet to try the green ginger and lemon grass will get it in ready for Mon my next chemo had my chemo f/up yesterday Dr told me if I have an allergic reaction this time she will stop it and try something else they are also giving it to me slower I asked if she could give me a diagram of where the growths and nodules are are so I could  place it better in my mind so she showed me the CT scan which has helped as you imagine all sorts, I asked if I would be having Ct scan after my 3rd chemo she said I think I will, they are going to test me for Lynch syndrome as I had the Bowel cancer first it could be a genetic related, I asked if there was anything I could take to stop the urine infections she no it’s just that everything down there is close to each other I think having the diarrhoea didn’t help she said I seen to of  had a bad time of it I said well I expected it would be but she said we like to hope things wouldn’t be so bad I must admit there a few low times when I think I can’t do this but then things would be better the next day it’s like you say roller coaster I’m hoping the next one will be better, got an appt Thurs for a wig fitting, bloods and PCR test FRiday then  isolating until Monday morning 9,30 am for second round now I’m on the antibiotics hoping I’ll have good days til then, I was wondering how yr 3rd chemo was and how your CT scan went have u had the results yet hope it’s good news thinking of you, 

               kind regards

               Mo xxxxx

  • Hi . Still waiting for the CT scan results so will find out more then. I'm feeling good in myself. Chemo 3 followed the same pattern as the other 2. Sickeness on Day 8. However my Oncologist suggested taking the anti-nausea tablets on day 6 and continuing to day 10 whether or not I felt sick and that did help. Only felt bad in the morning and not all the day. Did stay in bed until 14.00 (lush)

    Hope your urine infection clears up ok. It's really important to keep yourself hydrated and drink lots of water. Just thought, haven't noticed things tasting disgusting this cycle and maintained my appetite, still less than usual but kept to spicy things.

    Hugs, Barb xx


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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett