23mm thick lining......Endometrial Cancer??

This is a difficult one as I don't know much about thickened lining in someone so young! I had a lining of 18mm post menopause which turned out to be cancer 1A & I have had a hysterectomy with no further treatment! Just check ups! I'm sorry to hear about your breast cancer but it's good that they are keeping a close eye on you! Hopefully it will turn out to be nothing to worry about! Stay strong! & write all your worries on here! That helps me! Hugsxx

Thanks for the quick reply J. I'm sorry to hear about your cancer... I hope your check ups continue to be clear. Can you remember if your thickened lining was all the way round or just thickened in one area? My mum died of breast cancer when she was 34 years old and I was only 5 years old. I'm terrified history is going to repeat itself. Thanks again.

She said it was a classic thickened lining all the way round I think! But it can be caused by a hormonal imbalance at your age it's not necessarily cancer, although I can understand your worry! I am 57yrs old & they diagnosed it in July following my hysterectomy in June! How are you on with your breast cancer treatment? They know so much more now & can do so much more now with treatments than when your mum had it! Please try not to get too worried until you know what's causing it! Although I'm a fine one to say that! I will say that it seems a lot of womb cancers are curable with hysterectomy! But you may not have it so wait to find out what they say. When will you get results? Waiting is the worst isn't it!? Hugsxxxx

Yes i feel like all I've done is wait! Do you mind me asking why biopsies were not taken from your uterus first? Straight in with surgery? Re the breast cancer.... I had a bilateral mastectomy in December 2013 and needed no further treatment thankfully. So I'm just dealing with the emotional side of that now. But I'm aware that a history of breast cancer can be a risk factor for endometrial cancer and that's why I mentioned it. Thanks for your replies, I really appreciate them.

You're very welcome! I had post menopausal bleeding in March this year. I had ultrasound which showed thickened lining. I then had Hysteroscopy & biopsies under general anaesthesia. They showed no cancer or pre cancer but my team offered me a hysterectomy still as they could not see inside properly with the scope as my cervix was too closed over. I chose to have hysterectomy as there was still a risk of cancer, they found it in histology & I found out 4 weeks after op! I'm glad they've sorted out your breast cancer! Yes, The emotional side of all of this is difficult to deal with sometimes! I'm not looking forward to going back to work & facing all the questions! Hugsxx

Goodness you've had a lot of waiting and wondering. Great decision to have the surgery then! Yes returning to work will bring its own set of issues to add to everything else. Thanks again.

Yes, it's been a trying time & I'm so glad I trusted my gyn onc team, but onwards & upwards! Let me know how you get on! Stay strong & hope all goes well for you Hun! Joyxxx

Hi Alison, Really sorry to hear you are gong through such a rough time. I can only imagine! Womb cancer is rare in younger women and our symptoms are so similar to other benign conditions that the possibility tends to get discounted. But with your history of breast cancer and your family history I'm amazed they are not fast tracking you. Don't be afraid to kick up a fuss and don't be shy about making sure any doctor you see knows about this history. I say this based on my experiences - I'm also pre menopausal (although at 50 older than you) and it was my family history of breast cancer combined with my symptoms (heavy bleeding) that sparked my gynaecologist to fast track me. She was right - but even so the cancer was quite advanced when they caught it. Still curable but at the limit. Do whatever you need to do to get the right tests done - CT, MRI, biopsy. Pester your GP or clinical nurse specialist if need be. You have a need for either a diagnosis or peace of mind. Hoping for the latter xxxx

Thanks for taking the time to reply to me Daloni. The radiologist who did the ultrasound and reported back to my GP recommended that I be referred urgently to gynaecology....which my GP did. Since the consultant there downgraded me to routine, my GP has written and telephoned them a further 4 times requesting that I be seen sooner. But each time, gynaecology have refused. This has been going on since May! My appointment with them is now next Monday the 8th September. I know womb cancer is rare in young women but I also know that it does happen and I'm absolutely terrified about another diagnosis. I found my last diagnosis and surgery so difficult with my two young children (ages 3 and 1). What stage are you at now Daloni? And how are you feeling? Did you have an abnormally thick lining as well as the heavy bleeding? Thanks again.

Oh Alison. Of course you are terrified. My children are 10 and 14 so the challenges are different, they are coping so well and I'm very, very proud of them. I'm just finished chemo and it was all going very well until the last cycle when I developed an infection. It seems to be an infected lymphocele where lymph fluid has collected after they removed 31 of the lymph nodes in my pelvis. It's not clearing up and today the oncologist said she was unhappy proceeding with radiotherapy while I'm still unwell. So I'm in a bit of limbo. As for symptoms leading up to diagnosis, I had pain during sex for months that I put down to scar tissue from two tricky births. I was on the mirena coil which had stopped my periods altogether for several years and then started bleeding more or less non stop in October. The other symptom that I recognised in retrospect though not at the time was I couldn't pooh properly - more like a thin chipolatta than a proper sausage if that's not too graphical! I called my GP who said come in when the bleeding has stopped. Mid January I finally went; he said my uterus felt normal but referred me anyway to gynaecologist and for ultrasound where they said I had a huge fibroid. The gynaecologist said my womb was same size as four months pregnant and altered by a family history made a fast track referral for hysteroscopy where they found the cancer. My inability to pooh was because the tumour was so large it was blocking my back passage. March 20th I had total hysterectomy plus removal of the omentum. It had spread half way through the wall of my uterus, to Fallopian tubes, cervix, ovaries and into 15 of the 31 lymph nodes. It was a big, big and heroic surgery; I was lucky to come out walking and without a stoma. Thankfully it was not in the omentum (it's a fatty layer that hangs like a curtain over the abdomen; once it's in there it spreads). From what you say you've done all the right things. I'm so sorry to hear your GP has been unable to push this through for you. Let's just hope the gynaecologist is right. My experience is only my experience and doesn't mean anything for what's going on with you. I have my fingers, toes, legs, arms everything crossed for you. Lots of love and hugs. Xxxx