Has anyone suffered debilitating bone/muscle pain during 1st week post chemotherapy infusion?
Hi Sassy
yes- I did and its really unpleasant. It usually passed by the second week. From memory, it was a side effect of the paclitaxel- a bit like the aches and pains you get with flu but worse.
Have you given your 24 hour cancer number a call? its worth doing if only for reassurance. It will also help when you have your review as they will know how you felt with side effects at which time.
They can offer different pain relief but to be honest I found regular paracetamol or ibuprofen helped. Also lots of rest, hot water bottles and a soak in the bath.
Don't forget you can also give the Macmillan Support Line a call and talk to one of the nurses for further advice.
Jane
I found that with chemo its best just to go with the flow. Some days are better than others. My mealtimes did go out the window really. I used complan drinks, soups and made smoothies. I also got some smaller sized ready meals and kept them in the freezer so if I fancied something I could do it quickly.
Rest and fluids and do call the cancer 24 hour line at your hospital- sometimes they just provide reassurance- for me sometimes it helped just to be told- that this was normal side effect and would likely pass in a few days and I could try x,y,z would help.
I think you are right- however well meaning and sympathetic people are- it is others who have been through the same treatment who really understand. Chemo is tough.
With chemo 4 the main thing I found was that the fatigue increased. Other symptoms pretty much followed the same pattern.
I hope you start picking up soon and we are here if you need us.
Jane
