Coping with disruption to life

Hi RadiantSeal, 

Firstly, I am sorry to read about your diagnosis, I hope you have the support around you. 

I absolutely agree with you and understand where you are coming from. I am 34 and dealing with an atypical hyperplasia diagnosis at the moment and I am currently trying hormonal methods as fertility preservation to try and avoid having a hysterectomy straight away. But with all of that it has completely changed my life as well. My husband and I were due to relocate this year until my diagnosis in March. Now I am needing to stay put to be with the same care team etc. I also have struggled to work so it’s also really effecting every day life.

I have felt just as upset about the impact and changes on my life as the diagnosis itself and I’m sorry to hear you are also affected. But hopefully me relating provides you some comfort. 

I also wanted to say that I also suffered with low ferritin levels and when I had my biopsies they were done under general anaesthetic and I had to go through pre op and this is where they had me back in. I had to have an iron infusion to have general anaesthetic due to this and then be re-tested to check it was ok to go ahead - it was. This may not be the case for you but once I had my infusion it was all ok to go ahead and I had a more recent thorough biopsy which was also ok to go ahead due to this. My iron and ferritin levels were bad due to my high loss of blood from periods. 

Hopefully your team can come back to you with a more suitable appointment time. In the meantime reach out for support - this group is fantastic for that and I have found it so useful to me.

Take care and hope all goes well for you

Frankie x

Totally understand, and you are not alone.

I went through the horrendous period of tests and waiting for results, had my op sprung on me, appt Friday am and they said they had a cancellation for the Monday, and didn’t really cry. But the day I had to call the holiday company to cancel holiday I had planned to celebrate my birthday, I managed to get through the call and then completely lost it! 

I do hope they can come up with alternative date for you, will keep my fingers crossed x

Totally understand. This is something you are in a position to be able to do at a point when your life is about to go in a very different direction than you anticipated. I really hope they can give you an alternative date & time so that your competition can go ahead & you get to spend time with your friends. Good luck with it, in anticipation of it going ahead, and let us know how you get on.

If you’d been unwell on Friday, they’d have had to find another date to offer you, so if it had been me I’d have just told them that I had a prearranged appointment that I couldn’t cancel and could they let me know please when an alternative appointment could be offered or if it could be done by phone. Your predicted grade is grade 1 - grade 1 is slow growing. FWIW my hysterectomy in 2022 (also predicted grade 1)  was 7 weeks post diagnosis. My hospital aimed to do hysterectomies for grade 1 cancer within 6-8 weeks post diagnosis.