Continuing to struggle despite reassurance from CN Team

Hi Lizbot,

So sorry to hear that your mental health is overwhelming. It could be the early days of taking the antidepressants as they can sometimes make you feel worse before feeling better, I know mine did. 

I have had my hysterectomy and was initially told that I had a grade 2 stage 1b endometrial cancer. The final biopsy report shows a grade 1 stage 1b so mine has lowered which is great news. I hope this gives you some comfort as the final results are often better than originally thought.

Take care

Thank you for taking the time to reply and that’s great news. It means a lot you replying 

Hi Liz,

I was wondering how you were doing and whether you had heard from the specialist hospital, has your nurse been able to help you re understanding when they will see you? If not is it worth trying to get your GP to hurry things along? Appreciate its now weekend, and Christmas fast approaching, but I would be chasing on Monday.

I know you are struggling to believe your position, but it is low grade, tiny amount of cancer, so try to take comfort there.

you will get through this xx

So sorry to hear your struggling x I had complete hysterectomy & 4 rounds of radiotherapy in feb this year & im really struggling with my mental health .

im so do depressed since all treatment & nothing brings me joy any more

im wishing you a peaceful Christmas & let’s all pray for a healthier new year

I’m so sorry to hear this - are you through it now? I’m doing my best to get mental health support but it’s not forthcoming and very difficult to access. Are you trying to get help for your mental health also? 

Hi, no I’ve still not heard and it’s sending me spiralling even further. I keep reading about what was thought to be low grade cancer turning out to be a further stage than expected, and it’s causing me real difficulties, especially being told that one of my tubes is full of fluid 

I’m finding it really difficult to access mental health support, I’m feeling quite similar to how I did when I had my breakdown 2 years ago. The door seems to close in every corner 

I hope you are well and looking forward to Christmas 

I found some help from the Macmillan Hope programme online. It was good that I could dip in and out at my own pace which suited me. I think there are some in person versions too. The Macmillan helpline can point people to different places for support according to their local area so you might like to chat with them. Sending best wishes. 

Lizbot, I feel for you but as long as you’re googling you’re fuelling your anxiety, effectively self sabotaging and making things worse for yourself. It seems you may even now be getting muddled and confusing grade and stage? This Macmillan article may help https://www.macmillan.org.uk/cancer-information-and-support/womb-cancer/womb-cancer-stages

In my experience from what I’ve observed over the last 4 years since being diagnosed is that grade for this type of cancer very rarely changes, and stage rarely does, and if it does, it may go up one stage or two semis like mine did - my grade stayed at grade 1 as the vast majority do, and my stage went up two semis from 1a to 2. Sure it was a disappointment but I trusted my team and it wasn’t the end of the world. You are a predicted 1a - even IF your stage increased post hysterectomy histology, a 1b or 2 would be inconvenient and disappointing but, like mine, not the end of the world. You have endometrial cancer and it’s treatable.